NET Jejunum Primary & Secondary

Hello JuW

Am so sorry to read about all that you are going through at the moment. To face a new diagnosis whilst having treatment for your breast cancer must have been a shock and it is no wonder that it is effecting your mental health.

I had to do the injections into my tummy after my surgery and although it wasn't exactly nice it wasn't as bad as I thought. They do show you how to do it and by doing them yourself you do feel a bit more in control. One tip is to do them first thing in the morning (if your doctor agrees) then you will not be thinking about and building up to them all day. They did sting a bit but I found counting to 5 was enough. Also try not to inject in the same place twice as you can get quite bruised and it makes it more uncomfortable. 

I would definitely avoid googling to find out about anything to do with cancer, I did myself to begin with and scared myself silly. A lot of the information out there is years old and not necessarily accurate. If you want I can give you some information from Macmillan but don't want to do without asking as you say you are struggling at the moment. If you do, let me know on here and I can give you a link that will probably help a bit. 

If you ever feel it would help to talk to someone, the support line number is at the bottom of this and they are lovely. 

There is also an Ask the Nurse section that you may find helpful at some point for more medical questions.

Ask a Nurse - Macmillan Online Community

Hope this helps a bit

Jane

Thank you so much for your kindness Jane. I've been lucky to have a lot of support from Big C who've been wonderful throughout it all & are based at our hospital which is very handy too. I'd love the information link you have for MacMillan & thank you for being so considerate to ask first.

I don't know if you found this but I've found a certain amount of comfort in the not-knowing sometimes? However, there's a big difference in sheilding yourself from possible misinformation & burying your head in the sand which I definitely don't want to do! I've only had one discussion with the new surgeon so far as he's waited for me to be signed off from the breast consultant before starting treatment on the next one. I have a second appointment 25/5 with a view to having the surgery mid June.

Did I read correctly that you had to have the blood thinning injections after surgery? I think I've probably misunderstood what I was told previously because I thought I would need them before the surgery? It's definitely something to clarify in my next appointment so thank you for letting me know.

I've lived with anxiety & depression most of my life so, yes, my mental health has taken a bit of a battering with all of this but I'm still here even if sometimes it's literally one breath at a time xx