Blogging can be a great way to journal your experiences and share with others. Why not create your own cancer journey blog, or have a read of other blogs created by our members?
Unsure how to get started? Take a look at our help pages on blogs.
Another Saturday done, been a quiet sort of day. The kids spent a good chunk of the afternoon down the park playing, which is good, we had that little monkey of a granddaughter come round for a couple of hours, which is always nice. Shame I fell asleep again on the sofa whilst she was here, I rather feel like I missed out a bit.
Other than that, nothing much has been going on, I have once again gone the entire day without feeling hungry. I ate some breakfast at like ten o'clock, not because I wanted...
I want to tell you things I never got the chance too.
You did so much for me, yet I never showed gratitude. I am deeply sorry. You were and still are everything to me. I will never forget your face, smile, laugh, voice.. everything you've done for me.
You tried to guide me but I was too weak to follow, I led myself into trouble and in to the wrong paths and you happily stood there and waited for me to carry on guiding me. You never judged me, you always showed me love. You once told me you...
I am still hurting, with you gone.
I just want to hear your voice, be able to pick up the voice and have you listen and talk to me.
I miss your voice, the way you'd laugh and say "Ayup".
I just keep thinking you're sat at home in your chair watching Jeremy Kyle, cup of tea in hand. But you're not. You're with the Angels now.
I just sometimes with you would give me a sign that you're still there.
So. What a day today has been. I got a last moment appointment for my "planning" session for the radiotherepy - in, wait for it, Maidstone. Some nonsense about refurbishment and the wrong kind of CT scanner ruling out a much more sensible William Harvey or Kent and Canterbury which are much closer to home.
Oh well, a 40 min drive is hardly high on my list of complaints right not, so off I toddle. It started at 10:45 and I was reliably informed I'd be done at 1pm. Psh. I finally made it...
Woo hoo . . . last Oxaliplatin today!!!!!
The day unit was running late due to pharmacy being busy and meds late to arrive but all done and dusted after 6 hours. Had small tiff with a nurse who was reluctant to remove the PICC line at the end of the session (might need it in case of infection etc) but had already asked this question last Doctor led oncolgy appointment. Chat with lead nurse of unit sorted this out. So last Oxi in and PICC out.
Just walked in the door and my Mum phones to see how...
I have just finished my first round of PCV Chemo. Now on a 32 dayr est period before the next round.
I have found that I have had no effects from taking the tablets, even the tiredness was less..
PCV is taken from the names of the drugs used. V is Vinscrine, which is given as a one off fluid infusion at the hospital. After this you take three lomustine cpsules as a single dose. These are also known as CCNU, hence the C. These are followed by Procarbzine capsules (The P). I was given 30 of these...
Well thankfully, I have returned to almost normal again. I still feel a bit weak, very slightly nauseaouse. But as today has progressed I have felt more like myself.
The only thing I'm finding, and I did slightly the last cycle also, is I get a bit down. Not about the CLL or chemo just a general thing maybe sad is a better description. Not sure if its anything to do with the treatment or maybe I'm just getting old and longing for youthful journeys.
Taste and smell, now here...
Wow. Day 60? Seems like a damned lifetime now, I'm not sure I can remember what it was like not to have the damned thing hanging over me now. I certainly can't remember what its like not to have Cancer at the top of your list of things to worry about.
Its certainly put things into perspective, I guess. I don't get stressed about being late with the morning school run any more - what would be the point - I also don't really give a crap about money either. I worry more about how my family...
First of all I would like to say a massive thank you to everybody who commented and helped me in my last blog post. I have been talking to a few of you and I appreciate so very much.
I visited my mums grave about 3 weeks ago by myself, this has always been very hard for me to do, but after not visiting for a while I start to crave my mum so much and feel like seeing her grave is the place where I can forget about the world and have a connected chat with her. However every time I've visit her, my...
