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I am not quite sure why I started blogging as I am not really sure I "get" the medium. As quite a private person everything in me, well almost everything resists putting anything out there in the public realm and surely a diary would do. I'm told a weblog is a diary too but it cannot be because the very thought of writing something that other people might read changes the way I write, my diaries get written and burned so as not to be read. In a diary everything comes out as a splurge and...
Hi Everyone,
Apologies for my long absence, it's good to be back blogging again.
If youhave any questions about Lung Cancer or other cancers that affect the chest please send me your questions and I'll answer them in my blog post next Thursday at about 2pm.
Just to remind you I am a Clinical Nurse Specialist who works mainly with patients whose Lung/Chest Cancers are treated with surgery. I'll try my best to answer your posts and point you in the direction of some relevant information...
Dad went to the hospital to start Chemo, but collapsed in pain. The doctors weren't happy and admitted him to a ward. During the night he crashed and they had to revive him, he was then taken to ICU.
Apparently he had an infection, not sure about the details. Don't know what caused it, where or when it started. But he had a course of antibiotics and the infection is now clear.
However, there was concern regarding his kidney function, and he was still getting pain after a series of tests...
This morning I saw saw my oncologist who was pleasantly surprised by my reaction to the first round. I must admit it was scary - tingling from the oxalyplatin with any contact with cold things, but I found ways to improve it, eg warming water a bit before washing vegetables, using the most affected hand quite a bit seemed to help and getting my husband to deal with anything to do with the freezer!
Tiredness was the biggest shock, but I will expect that this time. I'm lucky that in the last few...
Just about to head to hospital for mid treatment CT scan, blood tests tomorrow then round four of chemo on Wednesday.
This month was pretty bad at the start but the past couple of weeks were fine, although even still I feel a very slight queasiness in my tummy.
Psychologically I find things hard at times, more in a being worn down sort of way. I'm fed up taking medication, fed up having needles stuck in me and just tired of the whole situation. The good thing is I'm...
Had a tough day yesterday. Every time I go to visit mum I look forward to seeing her, and this time was no different. She's had a few weeks off treatment and I was hoping that she might get some respite and be feeling a bit brighter.
I was gutted when I arrived because she looked totally exhausted and within 5 minutes of us arriving, took herself off to bed. She had made lunch, but was too tired to stay up and didn't want to eat.
Colin filled us in on what's been happening. She's been having...
Hi everyone i am back at last!! My daughter has loaned me her laptop until mine is repaired, i did'nt realise how much i depended on it. I must admit i've not been having too good a time recently, although i have'nt been really poorly, i have had little niggles of stuff such as, muzzy headache, nasty taste in my mouth and niggly pain here and there and above all else, the feeling that the cancer is taking me over and i'm going to die!!!!!. It's not something i feel able to talk to my family about...
An arbitrary point to post an update on my new normal.
I was told neos can continue to improve for 2 years and last year I found that hard to believe as I felt everything had settled down. But in subtle ways, I have noticed changes. I no longer feel so uncomfortable when filling up - that may be improved abdominal muscles. It means I don't get quite so much notice of need to empty, but I'm learning to re-estimate. I'm less likely to leak unless at max capacity.
Nights have slowly improved...
Well, there's been some sun today and I had a long night, so things are brighter. We went to the Historic Dockyard in Portsmouth today to see the Mary Rose in its new museum - very impressive. We managed a floor of displays in detail but both of us decided to come back another time to do the rest justice.
I had to admit I was too tired to go shopping for our lunch, so sat in the car while my husband got it. I am very lucky that one of his favourite pastimes is food shopping, especially if...
