Life after radical cystectomy

  • Nearly two years on

    An arbitrary point to post an update on my new normal. 

    I was told neos can continue to improve for 2 years and last year I found that hard to believe as I felt everything had settled down. But in subtle ways, I have noticed changes. I no longer feel so uncomfortable when filling up - that may be improved abdominal muscles. It means I don't get quite so much notice of need to empty, but I'm learning to re-estimate. I…

  • Interesting scars

    My main abdominal scar - all 9 inches of it - has settled down well. Something they don't tell you beforehand is how this will look at first & how it will progress, although I was told the scar would fade to a silver line eventually.

    Immediately post op there was an angry red ridge held by staples & my abdomen was uneven and lumpy. I felt a little disappointed at this. Tender & mucky with glue & blood. However…

  • 12 weeks on

    As I don't seem able to add to my original blog, I've started a new one. This seems appropriate anyway as I left the last one just about to go for surgery.

    After a diagnosis of TaG3 bladder cancer, I opted to go straight for surgery to minimise the risk of invasive recurence. I was fortunate to have the option of a neobladder. So on 1 Sep 2011 off I went for my operation.

    Here I am now 12 weeks later and feeling…