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Im here in the kitchen staring at this screen. harassing google with all the new words which have cropped up today.
After calling the hospital as my lovely man was too ill to talk yesterday and i havent recieved any texts from him today i was told his tumours are breaking down too fast. apparently theres problems. apparently the nurse couldnt tell me via the phone call i had made. so here i am waiting for them to call me back so they can confirm i am indeed Trevs partner and not some loon pretending...
Hi everyone. I just wanted to share some good news with you. I don't know if it's a coincidence or not, but since dad was prescribed steroids he has improved slightly. The improvement has meant he has been able to go out in his car a few times. In fact, he and Mum drove to Thursford to see the Christmas concert yesterday, the first proper outing they've had since the summer (and the under their own steam as well). Mum left him in his wheelchair while she went off to the ladies, and a lovely person...
After yesterday I just don't know what to say. Bert was so close to getting his transplant that his Chemo had been ordered, because of his low blood counts they took another bone marrow aspiration, the one 2 weeks ago told us he was in remission but this one told us he had relapsed again. The outcome was that there can be no transplant. To say we were devastated is an understatement.
We have an appointment tomorrow with Haematology to go over what happens next so I will keep you posted
Love...
After such brill news yesterday managed to drag myself into work today and stay until nearly 4 so major achivement.
Still on a high from yesterday then my mobile has just rung, the nurse from the oncology ward to give me two dates, next Tuesday for my pre chemo visit and then 1st treatment on 21st December, went a bit quiet and she asked if I was ok and when I said the oncologist had said treatment would start after xmas she said she had had the referral and my first treatment is in two weeks time...
We arrived at the Beatson to be greeted by lovely staff, room was ready and waiting for Bert. Tea and toast were served to both of us and we were left for a little while to get settled in.
Bloods taken Hickman line checked, cleaned and redressed. Apparently they have never seen a line like it everyone had to come and check it out, as there were concerns that it may not be in the right place.
X-ray and Echo all done. Blood results back Dr not happy as Bert is Neutropenic before he starts his chemo...
I wrote this blog a few weeks ago when I was really low, and Hugh (my husband was going through alot of pain.
Hugh and I hope that our story will help to make a difference, even if it is one person we can help or their family.
Please read and add you comments would really appreciate it.
http://cid-89ebd2cc3a018f63.spaces.live.com/blog/cns!89EBD2CC3A018F63!186.entry
Well I havent blogged for a while because have felt a bit rough but have been checking out the blogs on here. So glad that Skipper is on the mend and that Andrew is back with us.
Today was my first appointment with the oncologist and the results of the bone and ct scan. To say I was nervous would be a great under exageration, sitting on the ward waiting I was verging on a full blown panic attack and hubby could see this so just kept up constant distraction remedy and it worked.
Finally name is...
My keyboard has been burning up, not because I am blogging (although I have commented on a few blogs) but because I have been shopping online. Since I cannot shop out in the world like I enjoy...seeing all the sights and smelling all the smells, I have been doing it in here...lol. And I have baked a couple of batches of my mothers cookies...something she did every Christmas.
My tree isn't up yet. We still have to plaster the wall where the roof leaked (by default have new roof now) so we can...
Firstly, thanks to those for the lovely comments on my last blog :)
Now for the results...........
The tumours in my chest and neck have 'only' grown slightly.
The one under my arm has grown a little more, and it now 2.5cm.
I've been waiting for test results to check for a 'cell marker' called CD25.
I've found out today that I have this cell, which means I have been
accepted onto a trial at The Royal Free Hospital in Hampstead - which
is along way from us!
I will...
