Hevvur's blog

Well, i've been admitted to The Christie today to start my chemo.

Not even been here that long and i've lost count of how many drips i've had!

I'm connected to 3 pumps at the moment - what a pain to get to the toilet lol

I tried to come on yesterday to update, but I just couldn't manage it.

As you know, I was refused funding by my local PCT earlier this year for CHT-25 treatment down at the Royal Free in London.

People rallied round and raised enough money to send me at the end of June.

I had a scan after 4 weeks which showed great signs - neck was no longer active, under arm shrank by 2cm, chest mass shrank by half.

I had a…

Can you believe it............i'm actually in London, and start my treatment tomorrow!!

I'm staying in a hotel tonight, and have to be at the Royal Free Hospital in the morning!! They will then take me down to Nuclear Medicines for the treatment, and I will then begin my 1 week in isolation!!!!

It all happened so fast, I only got the phonecall on Thursday evening, and the doctors secretary said "You know when…

Well, we've raised the money for me to have treatment in London. Paid the deposit (£10,500), had the tests, now just waiting for test results from the bone marrow biopsy.

MUGA heart scan results were fine.

PET scan results.....not sure if it's good or bad news.........good news is that it's all still above my diaphragm.

Bad news is its pretty much everywhere above it - now spread to my left side…

I spoke to the consultant at the Royal Free on Friday (26th March) - no update - we are STILL waiting for funding from my local PCT.

I also had a meeting with the local Central Advocacy Services on Friday - and i'm hoping they can get in contact with my local PCT and find out whats happening. They agree that the time i've been waiting is too long, and not acceptable. So lets see if we get anywhere!

I had my…