waiting for the hospital to phone

1 minute read time.

Im here in the kitchen staring at this screen. harassing google with all the new words which have cropped up today.

After calling the hospital as my lovely man was too ill to talk yesterday and i havent recieved any texts from him today i was told his tumours are breaking down too fast. apparently theres problems. apparently the nurse couldnt tell me via the phone call i had made. so here i am waiting for them to call me back so they can confirm i am indeed Trevs partner and not some loon pretending.

im so scared.

my heart is beeping all over the place and my poor kids want mums attention and ive had to ask them to leave me be.

10 mins and still no call.

Ive found tumour lysis syndrome. which im assuming (read...jumping to conclusions) that it must be. some sites say its normal for burkitts lymphoma to end up with lysis.

i just wish theyd phone. i have to collect a friends child from school in about 20 mins, i so want to know whats happening before i leave the phones here.

so want to go to trevs room and hold his hand.

this is too scary. wish they would just hurry up and phone.

 

Anonymous
  • FormerMember
    FormerMember

    the trouble with googling things we can end up scaring ourselfs even more....hopefully as i type this you have had the call from the hospital and you know more about whats happening...

    hoping things go as good as possible

  • FormerMember
    FormerMember

    I hope by now you've had the phone call and know what is going on. Thinking of you and wishing Trev to be well, Love Linda

  • FormerMember
    FormerMember

    hey pluck,

    just wanted to say hello, hope you have had the call and its not as bad as imagined, the worst thing in all this is waiting!

    i can empathise with the distance thing, i was diagnosed in july with breast cancer halfway through my chemo now. my girlfriend lives in london and i live in the north west, it is tough, but i just wanted to say you shouldnt feel guilty about leaving him, circumstances get in the way and as much as you want to be there all the time practically its not possible. im sure if he thinks the way i do that just knowing you are there makes soooo much difference, my girl has been my rock, we only get to see each other about once a month but i look forward to our time so much, she is my rock and i would have been so much worse without her there, im sure trev will feel the same, never feel you arent doing enough because having someone that you love so much whether they are close or not is the best medicine.

    all the best

    lots of love

    sam

    xxx

  • FormerMember
    FormerMember

    the hospital never called back, so i waited till 10pm and called them. Was told that they were keeping a close eye on him and that was about it. was in pieces all night...

    His mum visited him the next day and trev was stable, he spoke to me on the phone and his voice sounded a little stronger than trhe day before.  they didnt do chemo yesterday as he was too ill...but back into it today.

    thanks so much for all your replies...  its so good to speak with people who understand all the emotions that run through relatives and loved ones as we try to come to terms with all the things that crop up along with the cancer itself. xxxxxxxxxxxxx thankyou