Blogging can be a great way to journal your experiences and share with others. Why not create your own cancer journey blog, or have a read of other blogs created by our members?
Unsure how to get started? Take a look at our help pages on blogs.
Tuesday 20 th December.
Well much better late than never, I got the second dose of chemotherapy this morning after Fridays postponement, the kind nurse phoned me yesterday to tell me that my neutrophils had gone up from very very low, where they had been at the 10 day stage and stayed until the second blood test, which actually turned out to be the fourth...to normal! I think she was surprised too. How did that happen?
I did give my bone marrow a damn good talking to all weekend and fed...
I wrote this last week, when I'd just had a call from the unit about an appointment I wasn't expecting. It really helped me to put it down on (virtual) paper, but I didn't feel I could post it until I knew the answer. I now know the answer, so here goes
I can't believe its been 22 days since my last blog! It feels like a lot longer.
I have spent the last few weeks rushing around trying to get organised to make mums Christmas really special this year. As well as working / cleaning / shopping. I have lost sight of the most important thing - spending actual time with mum. We were supposed to go to a Christmas event on Saturday night and I was really looking forward to spending time with her and taking some nice photos. But she was too ill to...
Hello to anyone interested, I've had nothing major to say on my recovery recently. After Ivor Lewis procedure on 3rd October, discharged on 15th October first two weeks eating was going well then at end of October started to get swallowing difficulties. I phoned hospital and was told that it was part of the healing process and too soon after the surgery to do anything. Had my follow up appointment with consultant surgeon on 25th November told me I had a 20-25% chance of survival up to 5 years. I...
I have been fighting this fight for a few years and winning I might add, but today I felt drained from the inside out, i don't know if it's the build up to christmas or work or family or all if it, but if I had a button I'd want someone to turn me off for the night, switch me on in the morning .
So it's a year on
I named my tumours the twins as there were two of them and they were growing really fast. My initial diagnosis was grim and for two months life was a whirlwind of tests, consultations, bad news, a radical hysterectomy, a wedding.....then great news my tumours were of low malignant potential. Christmas came and went. I went back to work and just muddled through trying to come to terms with it all, my new body (the scar is impressive) and the menopause, not just any menopause...
So….here I am in my kitchen with a cup of tea, once again the fluttering, flapping wings of Cancer muffling all my other thoughts. It’s so irritating! They quietened a little after my first blog entry so worth another try.
I’m on day 18 of my first cycle - round 2 is on Thursday - so it’s a good time to summarise my Cycle 1 experience. There’s a fair amount to say so I’ll just start with Treatment Day - Day Zero:
Treatment was EC90 - Epirubicin (aka Red Devil...
We were given the worst possible news last Thursday that my dad has cancer in multiple places. He's 81 years old and I am 39. He won't be having any treatment just pain relief. I'm really struggling to see his decline and as he didn't want to know a timescale, I'm terrified that he will go very soon. It's really hard to stay strong for my children, mum and dad. All of us are staying strong, dad included. As he has said, he's not ready to go and neither are we to let him. With Christmas this coming...
Last week was my three year 'check up from the neck up' and relieved to say am still in remission and making good progress now from the throat cancer and RT that took away a year of my life in 2014... Sure the nerve damage and feeling to the neck, shoulder and back will never get any better now but I am back playing squash to a reasonable level and am learning to fight judo left handed!...Still wish for a solid 8 hours sleep without waking up with a dry mouth, and would love to eat something...
Sunday 18th December.
Today has been a day of passing time until tomorrow, much like yesterday. I will have the blood test tomorrow morning and then have to wait until possibly the evening to find out the result. It all seems so cruel the waiting. It's exhausting. But what will be will be and there's nothing I can do about my white cell count. If I hear nothing by the evening then all is good, so I will not be wanting any phone calls tomorrow from late afternoon onwards...more stress. ...
