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How on earth is she going to cope....how are we going to cope....??? It's surreal still at the moment as we only found out mum was terminal 3 days ago.
Has anyone heard of cachaxia? Mum has it. Linked to her cancer. I'm afraid this could finish her before the cancer does. Cancer spread to her bladder and pelvic area, also suspect in her lungs and liver. They wont investigate any further...no point!
We have asked how long mum may live, but doctors are unable to say. It's unbearable, heartbreaking...
Next Monday I finally find out if my SIRT has worked. To say I am terrified is an understatement, even though I am trying not to think about it and stay positive.
They told me from the beginning that the odds were not in my favour with just a 30% success rate at my stage. Obviously not what you want to hear when it seems to be your last chance. I've been keeping myself busy and trying to plan in stuff all the time so I don't spend my time thinking about it, but as it draws this close, I can't help...
off to hospital , to visit hubby, taxi to train station, train to manchester, bus to the christie, so thats 20 miles there and then retun journey...iv only lived up here for 9 months and iv see more of manchester than i did my home town down south...lol....hope today brings you all peace, comfort, and pain free...hugs to you all.........................xxx
I definatly put my dad first ,i mean i left my job and flat to look after him and get him through this but as he lives in a housing assosiation rented house if the worst happend which i hope dosent what will happen to me ,i do feel guilty for having these thought and asking these questions but it just plays in the back of my head aswell as other questions but is this normal or am i being selfish?
had to cut mums hair off yesterday well what was left made me feel so sad .she looked really nice in her haed scarf and has had her wig styled but iit was still upseting for her .she came out of hospital on sunday in time for my birthday so that made her happy and her white blood cell count was ok .just have to see how it is today as she should be having her second lot of fec but has been warned it may not happen if her white count not high enough .hopefully its ok shes been told she might have to...
my wonderful hubby is still in hospital, had ct scan waiting for results, so they might do an mri tomorrow , hate seeing him in so much pain , the nurse explained that he had a massive astma attack after his chemo, so now hes on oxygen, so i wonder what tomorrow will hold......:-( im just feeling so low, and hubby is getting depressed,as we dont know whats going on, just want him home it feels like my left arm is missing were always together, feels like my heart has been riped out, hate feeling like...
Hi everyone... Just back from plastic dressings clinic.
GROIN - the liquid gushing out is now clear and not infected so happy with the that. Just got to keep and eye on any further infections.
GRAFT DONER SITE - pretty much healed
SNB WOUND - see photos below. only a little bit of sluff yet to come off and a fair bit of over granulation but its all under control. Monday they will start to deal with the over granulation.
I am hoping to get back to work in 2 weeks so I am staying very positive...
I felt like blogging because I'm feeling a little sad today, a year ago on this day I arrived home back In Australia after 5 years in London. Today was also the day we had our family meeting with the hospital nurses and doctors and learnt of the reality of mums condition. It's a sad time for me remembering the lead up to moving back home, feeling relentless anxiety for mum, not knowing what to expect yet fearing the worst. I've been listening to a lot of music lately and reflecting on our journey...
Feeling really great now working for a minimum 3 hours a day 5 days a week. Still feeling a bit tired at end of the 3 hours but definitely an improvement on the last couple of weeks. So to everyone else out there keep your spirits up trust in your specialists and have faith in your lord whoever he is. It is definitely beatable.
well i have seen my consultant on monday 19th april,and i thought i was going to start radiotherapy,but it seems that i will have to have another injection first and another scan to mark me up,also he asked if i would be intrested in brachytherapy,if theres anybody thats had this procedure could you let me know as i would be intrested to see how you got on,my psa level has dropped to 6 from 32 so at least that is coming down,the injections are giving me sweats all the time and making me tired,we...
