Next scan

  • new news, good and bad

    FormerMember
    FormerMember

    so I had my results fro my second lot of Sirtex treatment, but it ended up being more about what else had happened since then.

    Turns out that whilst the radiation seems to have worked very well on at least some of the tumours in my liver, the chemo (irinotecan specifically) has stopped working entirely between the 2 lots of scans which were only really 8 or 9 weeks apart. I now have over 10 tumours in each lung, where…

  • tough couple of weeks

    FormerMember
    FormerMember

    Hi Everyone,

    I hate coming on here and moaning but the last few weeks have been a bit rubbish. A couple of weeks ago I ended up with loads of fluid gathering in the space around my gut. I ended up looking about 7 or 8 months pregnant I was so inflated with the stuff and there was no shifting it.  It was so uncomfortable, even finding a comfy sitting position was difficult. 

    Anyway they finally 'drained' me last wednesday…

  • Moving forward

    FormerMember
    FormerMember

    I have good news lately with the new that the first Sirtex treatment worked, to what extent they didn't really tell me. Second dose results are still a good 8 weeks away, so I will be probing them more. I'm hoping that most of them, like 90% will have shrunk and be responding. If not I think I am still in a fair bit of trouble. 

    When i first spoke to the oncologist about my scans and the tumours, I had the number…

  • Amazing!

    FormerMember
    FormerMember

    So finally got the results on Monday and was so so scared with every day running up to it, and could not stop the feeling of sickness on the way to the hospital.

    Having established that I am apparently my own jinx as everytime I rock up to these damn consultant appointments on my own they throw me 10 steps back into utter despair, I very wisely took a good friend with me. And I think I did the right thing as at last…

  • worried

    FormerMember
    FormerMember

    Next Monday I finally find out if my SIRT has worked. To say I am terrified is an understatement, even though I am trying not to think about it and stay positive.

    They told me from the beginning that the odds were not in my favour with just a 30% success rate at my stage. Obviously not what you want to hear when it seems to be your last chance. I've been keeping myself busy and trying to plan in stuff all the time so…