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Catering must be in the air - picked up a free Delonghi expresso/cappuchino coffee machine today from the fab Freecucle :)
I've been veering between wanting to be treated as normal with no fussing to feeling slightly miffed at some absent folk ... now, there are not many of them I must say, just one or two, but it's all about lessons for us all, and some paths are not going to travel along together all the time, eh? :)
Along the way, over lots of years now, I've been blessed with some damn...
long story played out over only 20 months.....in a nutshell....new partner diagnosed with tonsil cancer in july 2010....just a few weeks after us meeting. intensive chemo and radio....ended in jan 2011...all clear in april 2011....then from july ...massive depression kicked in!! and i mean huge!!! he s turned to drink big style ..and has for the last 8 weeks!! hasnt been looking after himself at all.....really has been horrific!! yesterday he seemed a little better...but i have noticed that his neck...
My 'warped' mates know this already, but there are a few others that I think need this and haven't found warped so here it is for you....(charlie and armchair and hilary especially)... enjoy!
Warped mates, will do another silly soon... big hugs to you xxx
Feeling Tired? Fed Up? Listless? Hairless?
Or just can’t be bothered...
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Hubby went back to work today on Day 5 after his first chemo., and I am running around like a headless chicken trying to keep busy and not worry about him. I am worried the chemo bag might get caught in something, worried he might be with someone with germs, worried he might get overtired etc etc, all of which I cannot show because I know he has got stir crazy these last few awful days, since discovery of the recurrence of the cancer and the portacath being put in and the chemo started.
I am concerned...
Getting a bit more stroppy and cross with Mo now, I don't like it.Mo got up at 6am again this morning, "Where are you going its 6 o clock in the morning?", "What are you up to now?", "Nothing" she said "I just want to go out there" pointing to the lounge. So up I got and went into the lounge and switched on the light, then into the kitchen to make some tea. While I was making a cup of tea Mo had reached the front room sofa and sat down. After we had drunk our tea I said "Shall we go back...
Mo had some pain today which started in her stomach went up through her chest and ended up in her shoulders. Very weird,this is most definitely a first,hadn't a clue what to do though. Do I ring the 24hr phone line for Hospice @ Home and ask their advice?,do I ring the doctor or dial 999?, What?. Normally I have some idea of what to do but not this time,luckily I didn't panic thankfully.Totally froze though,I thought Mo had indigestion or was it just muscle pain from the fibromyalgia,that has happened...
Didn't get my respite care today as the Association Of Carers who were meant to be covering cancelled. The volunteer who was due to come in wasn't doing it anymore and another already had a client so they couldn't come either. I tried to get cover from A1 Carers,the other agency responsible for my respite care. A1 Carers said that they would try to get somebody. As I only spoke to Helen on the Tuesday they did say that it may be too shorter notice for them to sort someone out and it was, triple whammy...
No, not a very cheerful one.......!
This morning I nearly gave up on having a bath. Why? Because I'd have to to make sure it wasn't too deep and wear a necklace to tuck my tubes into and even then wash very carefully to not get too much of anything medical very wet... and I was tired of feeling knackered and I was all grumpy an dfeeling sorry for myself (no, really?! I hear you cry!) ........
So I lay on my bed and read a book (reading a fab one right now called House Of Sleep) to ease...
