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Drove my wife to her hair appointment at 1130. Felt shattered after with massive hot flush. (Off abiraterone for six days now but still on steroid tabs). My abdomen is much less distended now and my waist has lost up to 2 inches as measured by my trouser belt holes! The right leg remains swollen up to my knee but is cool and painless. No DVT there.
Bowel and bladder have behaved much more calmly in the past week and have obviously put out a lot of retained fluid, hence the reduction in waist size...
Trying to get ready for the big day. Have tried to correct my profile for this blog but have found no way of doing so. My diagnosis was 2013 not "this year" as in the blog profile, above. The blog entries are editable but not the profile heading.
Went for a pre-chemo blood test today at my GP surgery but forgot the blood form. This was because, at the last minute, my wife decided to come with me to see her GP at the same surgery, but without an appointment! As she is so slow we were almost...
This weekend was amazing, yet emotional. Since we don't live together, our time has always been precious, but never as much as now. It was a rollercoaster of a weekend and what should have been special was marred by an ex that didn't understand the meaning of the word ex!!!! All sorted now but pressure we did not need. We have argued for the first time ever which hurt like crazy, however, the plus side of that is that he has actually cried with me. A trip to the hospital resulted in us being given...
My ramblings about supporting my OH through him going hypo-thyroid as part of his treatment for Papillary Thyroid Cancer.
Just need to get it down and out there I suppose. if it helps any one else then all for the better!
So wet fish is now on holiday - again - he will actually have missed the whole month of August from what I can gather so it was down to the very nice registrar and special to field the questions. Cue lots of shocked looks and silences when Mark said no to the injections and questioned why he was having six rounds and why we hadn't been given the results of the bone marrow test which was done at the beginning of July and then I started...I sometimes think that these so call professionals would do...
Started the radiotherapy today. Had to be there for 9am but no one had mentioned there was a whole different waiting area for appointments. Once we found that out we were quick to be seen. A nice gentleman went through what was happening again, checking that I knew what to expect and going over possible side effects again.(sore mouth inside and out, trouble eating, tiredness, possible hair loss at exit point.)
The gentleman said today most of the time would be spent getting everything set up and...
Well to say last week didn't get better would be an understatement, the injections caused so much pain we had a trip to A&E in the early hours of Saturday morning. We did however, find out that M's white count was high as in well over normal range for someone who is healthy, never mind 3 rounds of chemo in. At this point M decided to disregard the remaining anti biotics and refused the last injection, can't say I blame him I wasn't looking forward to inflicting more pain on him....
The remission finally came to an end with a crash last Wednesday at my regular onco clinic. The PSA had gone up again to my highest ever level, -20, which is peanuts to other men! The onco registrar, bless her, had ordered an up to date CT scan. The last was done on 1 November last and I'm going to ask for a copy of that one to find out what it showed then. The latest scan showed significant advancement of all mets in the pelvis with at least two new fractures! I know because the Registrar gave...
i've had my voice box removed,This is my second battle with cancer.It started in 1999,with the removal of my saliva glands.The recovery didnt go as planned,i got Necrosis due to the radiation.THis made me deaf on my right side and blind on my right side,my sense of balance is upset,so my mobility is affected.Then last year i got cancer ibn my throat,and had my voice box removed,so now i cant talk or use a phone e.c.t The necrosis will eventualy kill me.last year my brother was murdered,and my grand...
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