NHL - a journey into the unknown

  • Over and out

    FormerMember
    FormerMember
    We got the final results on Friday. We waited for approaching two hours to hear what our future held, it wasn't a good time or a good place to be and I do question why they can't be on time when its results day. Anyway complete metabolic remission was the outcome. We both cried in the corridor and I cried all afternoon. It's worked we're done and I sincerely hope that's it forever Love to you all Helen xx…
  • It's nearly over

    FormerMember
    FormerMember

    Well it's been nearly a month since I updated this blog and it's been a bit of a whirlwind time but for once not because of cancer or chemo or illness but because of usual stuff like staffing levels and unexplained time off and the usual stuff we deal with in our normal lives.  It's been great to be annoyed at work again beause it means normal is returning.  We've regained some social life in the past couple…

  • Nearing the end of this part of the journey

    FormerMember
    FormerMember

    Well having re-read what I've written so far I am truly glad to say this bit of this journey is so very nearly over.  We have 10 days until round 6 - last chemo, the two antibody's on the end make our real end date November but it's the chemo I will so glad to see the back of.  Some form of normality must be returning to our lives as I got really mad with M today and left at home on his own to sleep.  My usual…

  • Interesting times

    FormerMember
    FormerMember

    After finally getting some info of some use from special I think I've persuaded M to complete the chemo course, basically because it's the right way to go and I can't be bothered with going through this again because he didn't have all the rounds. 

    So I actually managed to speak to special this morning and what an eye opener that was.  Out of a twenty minute conversation I think 15 of them were spent with…

  • CT Scan done - what happens now?

    FormerMember
    FormerMember

    So the CT scan happened yesterday after the 4th round of chemo.  We're still waiting for special to send some inof through about what happens if you stop at 4 rounds as opposed to 6 and to be fair I'm not holding my breath for an answer.  This of course is making it a very real possiblity that M will withdraw consent next Tuesday and tell them where they put their poison - I'm quite looking forward to the meeting…