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Hi,
My amazing dad has just completed a round of chemotherapy (docetaxal) after hormone therapy/steroids stopped working. The position prior to starting chemo was that he had advanced prostate cancer which had spread to his pelvic bone and rib area and his psa was 400 plus.
For the first 3/4 rounds, his psa continued to increase until it was over 700. This concerned us and we spoke to his consultant however he said this was usual. Finally his psa level started to decrease to 390 just before his...
I don't think I will have chemo. It doesn't work if you have 'squamous differentiation' so seems pointless, especially as the bladder is coming out. Surely it would weaken me before the op? I don't like the fact that the bag goes on your stomach. I was ok with the idea when I thought it would be on my leg. I guess I will need all new clothes to accommodate it. How will I afford it. And the bag looked smaller than the one I had on my leg. I could have a neobladder but it takes a long time before it...
Well it's really good news and bad news. The good news is there was only the one tumour which was completely removed during the op and it hasn't spread anywhere. So I won't die. The bad news is that it was malignant so it will come back. Stage 3, Grade 3, muscle invasive. So I have to have my bladder out. I'll be going for a stoma - the thought of self-catheterising does not appeal. It won't be for a few weeks and I'll be in hospital for about eight days. Loads of people in this group have had this...
I just noticed a sentence on my discharge letter.
'EUS: Retrocoele grade 2, palpable mass right side pre resection, persisting induration post resection ? muscle invasive'
Retrocoele is a prolapse of the bowel to the vaginal wall. Basically it's pushing against the wall.
Induration is sclerosis or hardening of tissue.
I have no idea what this means to any treatment I may be given. I guess I'll find out tomorrow.
I made it!
I managed to do everything I wanted to while in London, and pushed mysef as hard as possible - to the point of tears a couple of times - and nothing was ruined or missed out because of me! It was so lovely to be with my friend and her awesome kids for a whole week. I used to live right around the corner from them, so popped in or went out with them regularly. But I'm now a 4 hour or more drive away from them, so maybe see them once a year. So a whole week together was amazing. There were...
I’ve taken a huge step on my recovery. I’m now back at work!
Before my sicknote ran out I paid a visit to work. I was so pleased I did. The welcome I received was overwhelming. People are so kind welcoming me back and commenting on how well I looked. I never realised how much I had missed it.
I had a telephone interview with an occupational health consultant who asked me a variety of questions about how I was feeling, what I felt could help me back at work and any issues and concerns...
I have my results meeting tomorrow afternoon. I am nervous and praying for good news. However, thanks to the support of this community and the Fight Bladder Cancer Facebook page - link below, I feel able to face bad news if I have to. It's been inspiring and informative, so thanks everyone.
httpsps://m.facebook.com/groups/124453424252307?ref=m_notif¬if_t=group_comment_reply
