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Blog, what is blog, ah well here goes,
13th April, i'm on holiday at the moment taking time out with family post Biopsy (weel first week of Easter was sick leave) this week i've been out in the garden, trying to stay focusd on one thing, so so I can still feel usefull, hell on the 6th of April i did not know what was going to be the outcome of the biopsy, Grade II or Grade III Astrocytoma... thet word, I find my self saying it in the most silly places, feel as though there is a song in there...
Considering I had a fit, is it safe to re-enter the world of shooters on the PC? I have been a little scared to try it up, but have recentenly load a few games back onto my PC in anticipation, but have not plucked up courage to try. I'm talking serious shooter stuff, any one else out there using gameing to escape?
Hi all, well I can't begin to tell you how cross I am. I was expecting a McMillam nurse to visit me this afternoon at 2pm with regard to my pain management, an appt made last Thursday after being passed on from pain management nurse at Oncology unit.
I rang the number I have and got voicemail at 3-15pm and left a message asking if there is a problem please could someone let me know. I fully understand that there may have been a real problem with an earlier appt that could have resulted in problems...
Low neutrophiles, so it was decided that I should have a 'peg' injection 24 hours after to boost production in my bone marrow. The upside being to keep my count up. However the massive downside, sunday felt like I had had every bone in my body beaten with a bat!!!! Feel sluggish and tired, pretty crap really. Am trying to weigh up in my mind whether tis better to have a four week cycle, (but really want to get chemo over with), or to have a three week cycle and go through this, hmmm not sure...
Where do i start, ive wanted to blog for a while but didnt know what to say, well i think its the only way ill be able to explain how im feeling, and no one else understands except you lovely people in macland,
I will start by saying , i may say im ok when asked ,but of course im not , what a bloody stupid question ! i personally think im doing really well considering ,so does my mac counsellor, some days are harder than others and their is not a minute when i dont have a physical pain in my heart...
went to the christie with hubby today, no chemo as he has a kidney infection, and thanks to the sharp eyes of his wonderful doctor who spotted a blood clot on his right leg, so nice injections instead to thin the blood , good news is he starts chemo on the mon 19th...hooray...........x
Changed the diet, chemo's going ok, a few side effects but coping well so far. The Radium is alo fine, just unfortunate have lat slots booking, which means I get daily delays. But at least I still able to do lots of things, although engery level wains later in day. friday night trips to the pub to catch up with the lads, have stopped , not just case of being sober, but I find it too tiring.
The Bowen tratments ghave done me proud, would recommend that to anyone about to start the chemo/radium...
Just wanted to say thank you all so much for your comments. It is really encouraging to hear your experiences. I will speak to the oncologist about the steroids and I hope I can be as brave as you have all been and go through with it. I fully understand that this is about potentially saving or extending my life but just goes to show how great my anxiety is about the treatment that I can even consider not having it. Am at least going away from here heartened to hear again may not be as bad as I feared...
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