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Hi, I have never blogged or joined a forum before but read posts here and felt compelled to join in so I would not feel so lonely. My partner of 25 years has just been diagnosed 3 weeks ago with Non-Hodgkins Lymphoma and is currently in hospital. Sorry if this is not the right place to say all this, but I wanted to join in with you all as your comments and posts have comforted me.
I'm somewhat concerned about my reaction to Mum's passing. Since it happened on Tuesday, I have been relatively calm. A friend of mine picked this up today when I spoke to him on the telephone. When my mum passed away on Tuesday, it did hit me. Since then, I have felt something missing inside and I have felt different in some way. But I have hardly cried about it. I know different people react in different ways, but my reaction to it has surprised me. In general, I am a very calm person...
thought i wud give an update...before my head explodes!!!!
16th september .......another hospital appointment with oncologist. he went over all the history to the onset of trev s cancer...all the way back. then he went over what had happened reg the peg and trachy. told us that the cancer is in tonsil and lymph node in neck..large one!!! also then sed its at back of tongue because of the location of the tonsil. i didnt expect that!!! hadnt been mentioned before. the doc went on to say they had decided...
hey guys , i last heard from carol about 10am, she said to say hi to you all, typical carol thinking of everyone else, thats why she is so loved on here , i wasnt sure whether to write this but i know it would have helped me greatly in those last few hours of julians life but most off all in the following few weeks when i was feeling so lost and lonely and sad , my heart is breaking for carol and the only thing any of us can do for them now is to be their, im just hoping and praying for peace and...
Well as you all know i love a challenge but im stuck and its all thanx to a very sarcastic so called friend , i can turn my hand to most things as ive found out since i lost ju, i even now have greenfingers unbelievable if youve read some of my early blogs on here ,
only this morning ive made bread for the first time , and has come out fantastic,
So why am i struggling, well i bought a new washing line when my daughter broke the other one breaking in as shed lost her key , this friend was here...
only 81/2 weeks, but things are changing.
I hate to admit it but I do feel different, the pain is still there but a bit less raw. The appetite that had gone is back (i'll have to watch that sweet tooth). And things keep changing, it makes me feel so bad that Mark will not see them.
I am going to be the Godmother to my best friends baby girl. She was born only 3 weeks before mark died but he did manage to see her. She has changed so much in such a short time. I had assumed that her sister and...
15th septmeber....well another day dawns!! been to see trev today. had a text off him early this morning. said he d had an ok night but quite restless. also said his thriat was hurtin him today.....even tho thats where the cancer is..in his tonsil ...he hasnt been in as much pain since the trachy tube. went down to his and the district nurse was there......his peg site etc seems to be on the mend. he was saying that his tonsil seems to be getting bigger..and to him it looks like its fusing onto his...
well, thought i wud keep up the bloggin as it helps me sooo much!!!
13th september .. out and about today....trev had lotsa things today..tryin to sort out additional housing benefit...he s just got a new house to rent and obviously now on the sick. think we might be gettin organised. district nurse came out today....his peg site been oozing. she showed us how to clean the peg and the trachy site. i was really glad......i think he s done it the best he cud since dishcharge from hospital.....but...
ive added a few things on here before...but its takin me ages to find my way around here!!! was gonna keep a diary of whats been happenin...then decided to do it on here.
the story so far......im 39 and trev is 37....we met in feb...love at first sight!!! been having a brilliant time - gigs, scooter rallies...just enjoying being together. end of may trev felt unwell....flu or tonsillitis we thought. , had just started induction month for new job and had to postpone it. well he was back and forth...
should have had chemo ( ECX ) last week but it was cancelled because my bloods were too low. went testerday to see oncologist as normal who told me i wasnt having any more chemo as it was taking its toll on me. the results of the treatment have been very good and he was amazed at how well i had coped with it. so yesterday was my last treatment 90% of course completed. back today for transfusion and then thats it for 3 months when i go back for consultation. doc says that the cancer will always be...
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