tonsil cancer...our story so far xx

1 minute read time.

FormerMember

16 Sep 2010

thought i wud give an update...before my head explodes!!!!

16th september .......another hospital appointment with oncologist. he went over all the history to the onset of trev s cancer...all the way back. then he went over what had happened reg the peg and trachy. told us that the cancer is in tonsil and lymph node in neck..large one!!! also then sed its at back of tongue because of the location of the tonsil. i didnt expect that!!! hadnt been mentioned before. the doc went on to say they had decided on treatment......3 cycles of extensive chemo...4 day in hospital...3 weeks off....repeated 3 times. then a month off and then they will start combined radio and chemo daily for 6 weeks. he sed the initial chemo will go right thru the body....so now we lookin at hair losss which we didnt expect at all. they went on to ask about sperm preservation!! which again we didnt expect!!!! they sed if he wanted to preserve any then they wud have to delay treatment a little....he s sed no way just crack on with the chemo!!! soo....he starts on monday!!! first cycle.

he s been so strong.....i teared up a bit in the hospital. just one thing after another!!! pleased its starting tho. he was sorta looking after me!!! i ve tried to be so strong but it just got to me in his mams house and i broke down. i look at him and he s so lovely....i cant bare the thought of losing him!!! really cant!! know we got to thnk positive but just a little low tonight. i stopped cryin 2 weeks ago...and they back with a vengeance!! sure it ll pass

thanks for listenin!

lisa xx

FormerMember over 14 years ago

I went through some very sad phases. I cried on and off for a couple of days when we found that the cancer had spread, and that Mike's horrendous surgery had not done the entire job.

But if you allow the sad feelings some space and respect, they do pass and you find the courage to carry on. That's just what helped me. I couldn't be 'brave' all the time, sometimes the supply of 'brave' just ran out!

You sound so level headed and it's good in a way to know exactly what you are facing and what the treatment plan will be. Then you can get on and get through - whatever it takes. I'll be supporting you in a virtual sense every step of the way.

{hugs} and best wishes, Cathy XXX
- Cancel
- Up 0 Down
- Reply
- More
- Cancel
FormerMember over 14 years ago

What an absolute bastard this disease is..... I feel very lucky after the little bit I have been through - although it didn't seem little at the time and certainly wasn't viewed as little by my family. Grasp the good days with both hands and after the bad ones, pick yourself up, dust yourself off and start again. With best wishes and good luck

Keep smiling (when you can)

Love

Drew

X
- Cancel
- Up 0 Down
- Reply
- More
- Cancel
FormerMember over 14 years ago

thanks cathy and drew. yr words mean a lot. im a lot better than my last blog..have added an update! well i continued with my tears on friday..but i ve been ok since. had lovely weekend....and have def grasped the good days like u sed drew!!!

yr right cathy...some days the 'brave' just runs out!!! i do try but sometimes i just feel sad. know its normal so i feel ok :)

thanks so much for the support thru these posts.

really helps xx
- Cancel
- Up 0 Down
- Reply
- More
- Cancel