well, thought i wud keep up the bloggin as it helps me sooo much!!!
13th september .. out and about today....trev had lotsa things today..tryin to sort out additional housing benefit...he s just got a new house to rent and obviously now on the sick. think we might be gettin organised. district nurse came out today....his peg site been oozing. she showed us how to clean the peg and the trachy site. i was really glad......i think he s done it the best he cud since dishcharge from hospital.....but the peg care was explained to him just after he came out of sedation....and i dont think he took a lot of it in. now we know reckon it ll be ok. district nurse gonna come and check on him daily. he s got so much to cope with at the minute....cancer in his throat....trachy tube and peg!!! lots to take in when a month ago he was a 'normal' 37 yr old!!! seems its gonna be a long time before we get our normality back xx
14th september...not as god today. went down to see him and for the first time he was in bed . his peg was oozin and he felt really rough. def temperature. sat with him and just held his hand and he went off to sleep bless him . went downstairs to see his mam. she s struggling...def an emotional time. plus her house is being taken over by medical supplies. lots for her to take in...on top of her oldest son having cancer. district nurse came and cleaned his sites etc....deff infection. later the peg nurse came..she was lovely. not happy with the site so recommmended doc come. he did and now on additional antibiotics. hopefully that ll do the trick. its soooo hard to see him like this. nothing is the same anymore!!! just normal things we take for granted have to be thought about.....having a conversation!! remeber to put valve on. hav a cuddle...remember the peg site!!! but..i love him and im not going anywhere. just as well im off work at min . least i can help him thru this part before he has radio etc.
