tonsil and throat cancer ..our story so far xx

1 minute read time.

well, thought i wud keep up the bloggin as it helps me sooo much!!!

13th september .. out and about today....trev had lotsa things today..tryin to sort out additional housing benefit...he s just got a new house to rent and obviously now on the sick. think we might be gettin organised. district nurse came out today....his peg site been oozing. she showed us how to clean the peg and the trachy site. i was really glad......i think he s done it the best he cud since dishcharge from hospital.....but the peg care was explained to him just after he came out of sedation....and i dont think he took a lot of it in. now we know reckon it ll be ok. district nurse gonna come and check on him daily. he s got so much to  cope with at the minute....cancer in his throat....trachy tube and peg!!! lots to take in when a month ago he was a 'normal' 37 yr old!!! seems its gonna be a long time before we get our normality back xx

14th september...not as god today. went down to see him and for the first time he was in bed . his peg was oozin and he felt really rough. def temperature. sat with him and just held his hand and he went off to sleep bless him . went downstairs to see his mam. she s struggling...def an emotional time. plus her house is being taken over by medical supplies. lots for her to take in...on top of her oldest son having cancer. district nurse came and cleaned his sites etc....deff infection. later the peg nurse came..she was lovely. not happy with the site so recommmended doc come. he did and now on additional antibiotics. hopefully that ll do the trick. its soooo hard to see him like this. nothing is the same anymore!!! just normal things we take for granted have to be thought about.....having a conversation!! remeber to put valve on. hav a cuddle...remember the peg site!!! but..i love him and im not going anywhere. just as well im off work at min . least i can help him thru this part before he has radio etc.

Anonymous
  • FormerMember
    FormerMember

    Your blog makes for very touching reading.  It's really well written, and I'll be thinking of you all.  When does RT start?

    Cathy XXX

  • FormerMember
    FormerMember

    Hi Leeset,

    I know exactly what you both are going through, and

    to let you know what to expect after he starts his radio. I had 36 days of radio, and after the first week he will start to get very tired with no energy, there is

    nothing you can do about this he might also get rad Burns make sure that they give to plenty of cream,and apply plenty on the affected parts.Sorry

    But you are better off knowing what to expect.All the very best of luck to you both.

    Take care and be safe Big Hugs Love Sarsfield.xxx

  • FormerMember
    FormerMember

    thank u cathysl and sarsfield for yr kind words. i just find writing this blog help s me soo much. and also i can look back at how things are going. hopefully when its all done...i ll get trev to read it thru and see what he thinks xx