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Welcome to my unusually titled blog, I had best explain before we go further I suppose. Two days ago I had a conversation with a lovely lady doctor/consultant called Sybil Stacpoole who informed me I have a growth in my brain that shouldn’t be there. This 23mm long interloper is causing me to have epilepsy (more on that subject in a future installment) which is what led me to my local hospitals Neurology department and my lovely caring consultant.
I’ve had two MRI Scans in pretty quick succession...
What a horrid day. I had a visit from my GP and I thought, Oh! that's nice and caring. No such thing. All she wanted was for me to sign my life away by agreeing to complete a DNR. I know it's for my own good but, up until her visit, I was having quite a good day, just for a change.
I sat and smiled, and when through all her questions showing no emotion...…….but as soon as she left, I broke down into a blubbering heap.
Now that chemo is over I am preparing for a partial gastrectomy on 28 January. Having had major surgery before I can’t say I am looking forward to it!
Physically I am feeling better now and trying to walk every day. My Fitbit is very motivating as I can see how far I am walking. I don’t go to the gym, having spent more money on gym memberships than I care to remember! I now walk 3 to 5 miles a day and build in some cardio!
I need to try to put on weight for the first time in my life....
The chemo seems to have passed fairly uneventfully and i was scheduled for an Ivor Lewis back in April 2018 which duly went ahead. Shortly afterwards however things started to go a bit wrong. Both surgical wounds became infected and dehisced with the one to my abdomen leaving a round hole the size of a dinner plate on my stomach and me enjoying an extended stay in the ICU for nearly three weeks as they fought to control the sepsis. After about three months I was able to go home and I returned to...
I really don’t know why I’m putting myself through all this crap.
In the beginning I was fighting to get my life back to some normality, get back to work and carry on as normal...
haha .... then I lost my job (incapability of doing my job),
Ok so maybe fate was sending me in a different direction ... these things happen for a reason. I still have my house,family and friends to live for....
Jeez now I really am laughing.. it’s true what they say about finding out who your true friends...
Words by Alfred Lord Tennyson; music by Rani Arbo.
I first heard a choir arrangement of this song just before Christmas and then found the original on the album "Some Bright Morning" (info here, http://www.raniarbo.com/cds/some-bright-morning/ ). I bought the album (which I love... it's great to sing along with) and have been learning "Crossing the bar" on my ukulele using my own chords.
The words of the song are from Tennyson’s famous poem, which he wrote at age 81. I feel drawn...
My beautiful mummy passed away yesterday afternoon at 5.50pm. This has all happened so quickly...she was admitted to hospital last week as her heart rate was very high just before they did chemo so they cancelled the chemo and took her round to A&E. We found out about 3 days ago that she had pneumonia and they had put a DNR in place as she would be physically too weak to cope with resuscitation which was quite a shock as none of us had any idea it was that bad. The next day the doctor asked to speak...
I started writing this quite a while ago as an update, then it was a Merry Christmas message, so Happy New Year.
There has been an awful lot going on but it’s no excuse. I’ve sat down in front of the laptop on many occasions but just haven’t had the motivation to write anything. For this I apologise.
Well what’s happened.
Firstly, I must mention the birth of my granddaughter Eadie. I know I’m biased but he is an absolute angel. She always makes me smile. She is so beautiful...
Well, second Christmas post-treatment approaches...albeit just under 13 months since last radiotherapy session.
2019 will be interesting with a new job and a focus on new physical challenges. Ultra challenge 50k is the target. The dry mouth remains a pain in the @rse, but there will be a way to overcome that.
My rescued one-eyed kitten has become rather a great companion out here in the sandpit. Looking forward to getting her and me out of here and back to a vaguely normal existence in 2019.
Merry...
Hi All!
It's been a while since I've updated and we've had quite a bit happen since then. Mum was in hospital as she was struggling to breathe again and it was discovered that she had blood clots on one of her lungs.
We've also been in touch with a local charity and hospice called St Giles who sent someone out to speak to mum and they seem really lovely and helpful and have organised a wheelchair for mum to help her get out and about. They also have a Lymphodeoma clinic and she was referred...
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