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Well, I can hardly believe that the last four months have past by so quickly as tomorrow it's back to The Christie for my check-up again. As per usual, my nerves are starting to jangle at the thought ......... especially as three years ago I was almost at the end of Radiotherapy and in a very bad state ( indeed, I was so bad that they admitted me to a ward for care ) So that will entail a rather quick and undignified scurry along the corridor to get past the Radiotherapy Suites as rapidly as possible...
One week ago today we were hit with the news that my husband's cancer had returned - 7 days and nights during which our world has been turned upside down. We are now waiting to hear when the chemotherapy will start - I keep wishing the phone would ring then at least we can set targets, but the silence is deafening.
My husband has returned to work whilst we wait to hear, and that is good. He was getting very depressed at the end of last week and it is great that he is able to be with his friends...
Ok have my wonderful appointment at the 'One stop gynae diagnostic clinic' - sounds like some sort of supermarket.
Can not face breakfast and tummy has decided that it would like to empty - at least they should get a better look this time then lol!!
I did sleep last night so that was a plus - do not look quite so awful/bride of frankenstein like.
Will update later
Mo had a good day yesterday as well as a busy one,she got up for morning meds & had some breakfast,always a good start.My mum came around in the morning about 11ish to see us and help me change the bed.Mum fancied some KFC so I popped out to get some as well as some other bits of shopping I needed.Mo got up again and had a piece of chicken & some fries and stayed up for about an hour and a half and then went back to bed.The Hospice @ Home nurse turned up a little later to see how we were,just routine...
Went out today on my own while Paul stayed at home 'sitting'Mo,didn't like it just seemed wrong.I know it sounds strange it was just because Mo should be here and she wasn't I got quite emotional & slightly tearful.WE should be drinking a cup of tea outside the cafe and not just ME,WE should be walking around poundstretchers discussing what colour new fitted sheets we should get not just ME.It was very hard to find something to do instead of just 'treading water' waiting for the time to pass quicker...
Yesterday Social Services came up to do a care assessment on Mo & a carers assessment on me.Very nice lady unfortunately can't remember her name,we have had so many people visiting for one reason or another remembering names has been hard.After giving her all the history from day dot about whats been happening to Mo we managed to make some care arrangements.Someone will be coming in three times a week,Mon,Weds and Fri to help Mo have a wash,wash her hair if needed and maybe get her in the bath.We...
over the coming weeks commecing on the 28th june im having a stem cell transplant and will be keeping a diary on this blog! one to kill the boardom and two to keep a record of my day to day events to help others to understand what happens who are to go down this road......
To be continued...........
17th June 2011
Bit of a set back today after having my medical and PET scan on monday, was told today that my donor was not able to donate at this time, so its back to the drawing board to find another...
Hi everyone, just thought I would let you know that a stem cell donor has been found for my husband and it appears to be a 100% match! The next chapter of our journey begins on 20th October with the pre-transplant chemo in order to kill all his own stem cells. The donor cells will be transplanted on Thursday 27th October a big day!!!!! wanted to share this news with you all. Much love, Julia xxxx
It was 3 years ago today that Bert was diagnosed with his AML. he fought hard struggled through his chemo which caused all sorts of problems. He achieved remission and we were delighted. However, exactly a year later to the day he relapsed. Devastated was an understatment. They found him a Bone Marrow Donor and got him into remission yet again. We went to the Beatson in Glasgow the week after they told us he was in remission to prepare for his pre transplant chemo, only to be told that "you have...
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