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Hey xWe are due to go for a pet scan on Thursday and also have her line put in for chemo, I have read about lines and ports and my daughter is scared of needles but I don't think she will want to be awake for this , does anyone know if they put lines/ports in while under anaesthetic? or must she be awake?
Thanks guys x
Two weeks ago now, 8th December, I was lying in ICU having spent 8 hours in OR. When I came round I was happy to hear that they had left me with 20% of my stomach. They had managed to perform the sub total gastrectomy by keyhole surgery which was a huge relief. My surgeon had told me that was the plan but also gave me the spiel about how things could change when they put the camera in for a look. I know that they have to prepare you for the worst.
Next day the surgeon popped by to say that he...
Such a lot has happened since my last blog. The other tests were all clear so we are only dealing with my boob and lymph glands. The consultant did mention that they might do a full lymph node clearance at op time but I suppose we will see how much things have shrunk with the chemo. I got the choice of hospitals for where to get my chemo and went with a tip from one of the nurses who said the chemo unit at St J's was a wee bit comfier. One of the BCNs from there was at the main hospital that...
I had a follow up appointment with my surgeon today. The lump is gone, it was 14mm and clear margins so no more surgery. Confirmed it is grade 3 but not what stage. SNB showed small amount of cancer cells in the sample - could have lymph node clearance or radiology. I was told before that it was ER+ and need hormone therapy but test is being redone. Now being transferred to Oncologist to decide treatment plan. Appointment will be after Christmas. Going a little loopy waiting for decisions...
I have always written a diary, even before my diagnosis and I have continued with it over the last 15 years but this blog is different - my paper diaries can be read by my daughter and my husband after I am no longer with them - they will however never read this blog and that means that I do not have to self edit myself something which I have been known to do in my diary and only since I had my diagnosis.
Once you have been told your cancer is terminal there is no going back from that - I know...
It’s been a pretty tough week, but I’m definitely feeling like I’m through it and have come out the other side feeling good.
I went in to hospital to start my FCR on Monday and had a reaction to the Rituximab. Apparently it’s quite common, although me being me I decided to have a severe reaction. My blood pressure dropped suddenly and I passed out. I was kept in overnight for monitoring and was restarted on Tuesday in the ward. A scary day on Tuesday waiting for the same thing to happen again...
Last blog post was about what a Trachelectomy is. This blog post is about my own Trachelectomy or at least the surgical part of it and the hijinks that ensued. Ooh, you are lucky things! To be fair, as I was unconscious for most of it I don’t know how long this post will be. I am planning on doing a post-Trach post (that’s a lot of posts) separately.
Here is the Jolly Christmas Postman.
Why? Why not? (Because there were lots of posts… get it? Get it?! What do you mean it is neither...
It's been 10 days since my surgery. The dressings are off and the scars ate ugly. It looks like the front of my breast was chopped off with an axe. It is hard to look at my image in a mirror. It seems so drastic when I feel so well. I won't get my results for another few days on 20th December. Will I need more surgery? Did they get clear margins? Will I have chemo and/or radotherapy? All these questions going round my head. Should I go back to work while I am waiting for treatment to start...
