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• Cool Cap Relief

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• To Hop-on or Hop-off is the question?

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• Today my coffee tastes like Christmas in Costa Rica

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• One Step At A Time

  Phild26 2 days ago
• Community News

  This is a place where you can read about everything that's happening on Macmillan's Community. From guest stories, to sharing awareness months, here is where you'll hear about all of the latest from Macmillan's Community.

  Dylan - Online Community Team 4 days ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

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• Multiple Myeloma

  Tess123 14 days ago
• Mumofcancer

  Mumofcancer 21 days ago
• Cycle 19 and not working anymore

  Emotions 23 days ago

Latest blog posts

• New Haw Saint Bladder Cancer journey

  20 DAYS ON (29 July 2020)

  It’s been 20 days since I’ve been taking it easy and waiting for the next hospital appointment which was today.Time has been spent building strength and following my routine of the 6 hourly bladder flushes, and of course taking it easy. B...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  USING NEO (31 July 2020)

  Was back in hospital on 30 July to begin using my Neobladder. For the record my Neo was constructed using 60cm of my small intestine. Sounds a lot, but we have about 7 meters of small intestine and my bowel function, which could have been affected, s...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  TAKING IT EASY (9 July 2020)

  Just back from another trip to Charing Cross hospital but this time for a scheduled check up with my urology nurse and one of the two surgeons who operated on me. Two little steps forward to normality. Firstly, the pressure pad that covered the wound...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  HOME – AGAIN (1 July 2020)

  Being hitched up to the IV machine for 6.5 hours a day for the last week has done the job and wife brought me home last night. Bladder flushes are back to every 6 hours, so without hospital noise and light, plus only 1 bag to worry about and being to...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  STILL IN CHARING CROSS (29 June 2020)

  Sunday night was my 5th night in hospital after the problem with my drain bag filling with urine.That’s a night more than I was in after the operation.However, it is much easier being in hospital when you are feeling well, especially as I can g...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  FRUSTRATION (26 June 2020)

  This post is being typed from my hospital bed on Friday 26 June which is 11 days post-op, and I’m here because during my short time back at home I was not cleaning the new bladder correctly. Yesterday I spoke to the same nurse who had said he w...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  A SETBACK (24 June 2020)

  When I left hospital on Friday I mentioned an issue that caused stress, and that same problem has me back in Charing Cross hospital today. Staying the night and potentially tomorrow. I must repeat two things:1. All care I have received has been excel...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  DAY 1 AT HOME AND MY NEW SKILLS (21 June 2020)

  First night at home was dreadful as I had an unrealistic thinking that being in my bed all would be well. It wasn’t. Just as bad as hospital. Maybe should have stayed another night. Even though I do now have a Neobladder, that will take time to...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  HOME (20 June 2020)

  The epidural removal didn’t really affect me. The nurses kept checking where the block was by blasting either side of my body with freeze spray but I could always feel it, except for a bit by my knee. Intravenous paracetamol was then used. I ha...

  Chasam over 5 years ago
• New Haw Saint Bladder Cancer journey

  DAY OF OPERATION (18 June 2020)

  Still extremely tired and sore, but want to put a few things down in the coming days. Remember this is hopefully going to be of use to a future patient. Spoke to surgeons and anaesthetists on Monday June 15th 2020 about 8:00. Also saw Stoma nurse who...

  Chasam over 5 years ago