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Hi My husband goes in to have his sarcoma lump on top of his inside leg in 19 Nov 2025, can anyone help me how long recovery could be? They have to remove a muscle in the top of his leg too, so I am guessing that along with radiotherapy after op there...
hi ive got a sarcoma and had surgery to remove it from my foot. unfortunately it has invaded my blood vessels so it looks like a below knee amputation is required. \I live alone and wonder how i will manage and how long the rehab will take. Im fearful...
Hi, has anyone else had/been diagnosed with a uterine adenosarcoma? I was a month ago and had surgery on Monday. Struggling to find much information on them and would be good to talk to someone in a similar position to see if they have any more information...
I was diagnosed with a GIST after a stomach bleed last year. I have since had a partial gastrectomy and the tumour was found to be a gastric glomus tumour and not a GIST. I have been told that I am at high risk of the tumour returning and will have regular...
I have been diagnosed with this type of soft tissue sarcoma, has anyone else had this? Looking briefly at the forum can't see anyone mention this. Would welcome any information on treatment and possible recurrence.
Hello All, I had recent surgery for stomach GIST which seems to have gone well. Partial gastrectomy 4 weeks ago now. I felt fine until I had an upper GI bleed went to my local A&E and it was quickly recognised after endoscopy. from there it was robotic...
Hello In Jan 2023, with no prior symptoms , I was rushed to hospital with a perforated tumor in my small intestine. During life saving surgery, another tumor was found on my liver. After 6 weeks of waiting for the outcome , I was diagnosed with high...
Anyone else been diagnosed with a GIST Tumour? I have been diagnosed with a 12cm stomach GIST and am being treated with imatinnib to shrink the tumour to a size that can be removed by keyhole surgery. I have no symptoms and feel fine but would be interested...
hi I have had a myxofibrosarcoma removed from my foot. A below knee amputation has been offered/suggested, for quality of life, as radiotherapy apparently may leave me with a painful useless stiff foot. There are no local patients that have been through...
I am 59 years old, post menopausal, living in Devon and was diagnosed with probable embryonal Rhabdomyosarcoma following a full hysterectomy in January 2025 to remove a Teratoma which unfortunately ruptured during surgery. following 9 rounds of IVA...
