Leg lump sarcoma

Hi,

Your husband’s case sounds quite similar to my husband’s. He had a sarcoma lump removed from the top of his inner leg in 2022, and thankfully all is well now. Although I can’t offer any medical knowledge, I can offer emotional support. That time was very scary for us, but I wanted to share that it was never as bad as we’d prepared ourselves for. The doctors are incredible at what they do.

Wishing you and your husband all the very best for the surgery. I hope everything goes smoothly. Happy to chat anytime you need.

Rachelle

Thank you. I am really trying to gage the radiotherapy and physio timescales because once he has completed all of that they then have deal with another sarcoma they have found in his stomach 

Hi Karen,

I completely understand you wanting to get a sense of the timescales. I wish I could be more helpful with that side of things. Hopefully someone else on here might have a clearer idea of how long thing may take. Wishing you both all the best as you go through this.

Rachelle

Hi Karen,my sarcoma was on the back of my right leg,just above the knee.It grew quickly and pressed on the main nerve causing several months of extreme pain,especially when I tried to sit down.

I had my radiotherapy before surgery,25 sessions,which were fine with no initial side effects.The only issue from it was the skin went a bit leathery meaning the stitches didn't hold,so i needed a skin graft to heal it up.It has healed well since.

The tumor ended up about a foot long and 6 inches wide and resulted in my hamstring muscles being removed with the tumor.I was on my feet the day after surgery with crutches,and I can walk fine with a slight limp,but cannot bend my leg back beyond 90 degrees,making tieing laces almost impossible as I can't reach my foot.

It all depends on how invasive the surgery is, to judge the impact,but the surgeons can only know what needs to be removed once they are "in there" on the day. My mobility i feel is amazing for what has been removed,i still get discomfort daily 20 months after surgery,but i  balance that against being mobile and also still around to talk about it.

I wish your husband well,he's not on his own,it looks scary now,but he'll come out the other side.All the best,Marcus.