I wonder if anyone out there has this diagnosis, if so I'd love to hear from you.
So 3months after grade 3 complete tumour resection in neck...was at christies today to see about adjuvant radiotherapy,only to be told that mri scan 3 weeks ago,that I have a 5cm residual tumour..there is to be a meeting to discuss if surgery is feasible...
Hello, My dad is in his 80s and has just been diagnosed with a high grade spindle cell sarcoma. Seedlings have also spread to other parts of his body. He is struggling with the use of his arm. Getting treatment has been a real challenge with MRIs...
I noticed quite a large lump on my forearm by my elbow joint 2 weeks ago. My GP gave me antibiotics to treat for a lymphnode infection but this has not helped. I have an appointment with her tomorrow where I feel she is going to refer me for an ultrasound...
On the 17 th March 2023 I was diagnosed as having pleomorphic undifferentiated Spindle Cell Sarcoma in my left upper arm.. It took nine months to reach the diagnosis having pestered the doctors for a referral only to have a surgeon deal with my lump...
Hi all, I wrote a post a few weeks ago regarding a lump in my finger that I've had for over 5 years. After a recent ultrasound I was referred for an MRI and then to the sarcoma team to investigate further. This was all a massive shock to me as I've...
Hi there a relative of mine was recently diagnosed with myxofibrosarcoma, they had 5 weeks of radiotherapy which unfortunately did not work, they then had 3 weeks high intensity radiotherapy crammed in to 1 week and they are feeling really miserable,...
Dear All, I'm new to this group. I found out i had a large gynaecological tumour on the 6th of February when I was admitted short of breath, with my right lung full of liquid. The treatment I have received from the NHS has been fantastic, and I cannot...
My husband has had a tumour removed from his buttock. A very large incision, as the tumour was embedded in the gluteous maximus and all had to be removed. He is still in hospital eight weeks after the operation as the wound is not closing at one bad damaged...
Hi im almost 6 months post initial surgery to my foot & have completed 30 sessions o f radiotherapy. Sadly my tumour has metastasised/spread to my groin lymph nodes & I have lumps in my lower leg within the lymphatics. I’ve been told this is highly...
