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Hi. I just need to try & make sense of what my lovely daughter is going through. She has had 4 rounds of chemo & has returned to the hospital each time with awful side effects. Is anyone on here going through this illness?.
Hi everyone, I am 35 (F), diagnosed with advanced leiomyosarcoma a couple of months ago (with lung mets). I'm about to go in for my second round of doxorubicin and ifosfamide inpatient, nice to meet you all
Hi! I want to share my story in the hopes of learning positive stories from others, and potential options. I was diagnosed with myxoid liposarcoma in May 2023, underwent 25 radiation treatments and a resection. Followed by a serious infection, 3 IND...
Hi all, I’m after some advice please? in October I noticed a small (2mm) hard lump in my thigh so I went to the Drs & she wasn’t concerned but said to keep an eye on it. By the end of November it had grown (5mm) & changed shape so I went back again. Still...
Is there anyone out there being currently treated at Derriford in Plymouth? Have an appointment with my surgeon this week to discuss options. Really scared about having more surgery - swore I couldn't go through any more after extensive surgery last...
Hi All, Hello everyone! My husband aged 67 was diagnosed with Angio Sarcoma on his scalp 30/12/2025. We had never heard of it but the first online search made us both terrified of what we were facing. It had taken nearly 4 months from the first GP contact...
Hello All, (New to the forum- hope this fits in General discussion rather than anywhere else, but please let me know if not!) I am a 45 year old gay man and was diagnosed with Kaposi Sarcoma in 2020 by my local dermatology. Although it is non-HIV...
Hi, I have created this post in part to try to share my own experiences but especially to try to find people who are having similar experiences to me. Brief history: Diagnosis January 2022, of myxoid liposarcoma having found a lump on the side of...
Hi everyone! I haven't posted since 2024 after initial diagnosis, so feel a bit like a 'newby' again. I feel luckier than some of you, my experience was good, in that, following some blood tests because I felt a bit out of sorts, an ANP at my surgery...
I was updated Friday that this is what is suspected for my soft tissue mass which is 17.5cm by 13.5cm. No update on the mass on my pelvis as this was sent to gynaecology which has since sent back to orthopaedic. Chest xray, CT etc booked in. But if...
