GIST (soft tissue sarcoma)

Hi Melly9e243b 

I am Steve, another of the community champions and my expereince of cancer is via my wife who has Leiomyosarcoma rather than GIST.

I noted your post had not picked up and replies yet so I thought it might be helpful to link you to other posts on GIST using the search tool here.

<<hugs>>

Steve

Hi

I was diagnosed with a 10×8 GIST in January 2024, was treated with Imatinib for just on 12 months. In January this year I had surgery which successfully removed the tumour, which had shrunk to 6×4. I'm still on the Imatinib until March 2027. Throughout the process I felt, mostly,  fine. Had the odd day of not feeling so great. But I went regularly to the gym, and the parkrun every Saturday, keeping active, I think, really helped. The treatment I've received throughout the process has been fabulous. The NHS truly at its best! So good luck with your own journey. Take care.