hi
I have had a myxofibrosarcoma removed from my foot. A below knee amputation has been offered/suggested, for quality of life, as radiotherapy apparently may leave me with a painful useless stiff foot. There are no local patients that have been through this as I’ve asked both the sarcoma team & Maggies.
unfortunately I have a rare cancer in a rare site so trying to find someone with experience of this who I could speak to. I’ve Been told there is no survival benefit in me undertaking the amputation Grateful for anyone who has experienced radiotherapy to the foot to reach out
Regards Catherine
Hi Catherine
I am sorry that you have not yet had a reply to your post but sometimes it can just take a little longer, especially where there is a rarer cancer.
I understand that it is a difficult decision to make and that it would really help to speak to someone who has gone through similar.
I had pelvic radiotherapy myself ( endometrial carcinoma sarcoma) and have been left with long term effects. However I find I can manage them on the whole. I remember being told by my consultant that it is difficult for them to predict who will be adversely affected by the radiotherapy but that they have to go through all the possible side effects.
While you are waiting for a response to your question these may be of interest.
I don't know whether you are aware of Home | Sarcoma UK but it may be worth having a look on there.
This link has some general info that may be helpful.
Radiotherapy for soft tissue sarcoma | Macmillan Cancer Support
You are also welcome to give the Macmillan Support Line a call if talking things through would help. Sometimes when making a treatment decision it can help .The support line is available from 8am-8pm daily.
I wish you well with your treatment, whichever you decide.
Jane
