Myxofibrosarcoma

Hello Gardenshed 

I am Brian one of the Community Champions on the online Community. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer, however by me replying your post will be "bumped up" to the top of the page and I hope seen and answered by other members of the soft tissue sarcomas group.

There are a couple of threads you may find helpful and the links to these are here:-

 GP said sarcoma but MRI report says 4 differentials 

 Myxofibrosarcoma diagnosis - GPs slow to recognise? 

I do hope this helps and I wish you well moving forward.

Best wishes - Brian.

Hi, I had it in 2014. Have been all clear since then. How can I help. 

Hi good that you are all clear. I had a very large pelvic  tumour and was told it was very aggressive. I have had Radiotherapy and surgery. Obviously worried about recurrences. How often were you followed up and with what sort of imaging. This is my second primary cancer had breast cancer 9 years ago. Quite anxious about it all and lost my sister in law to pancreatic cancer very quickly last year so feeling quite negative at times.

I saw the doctors every 3 months after finishing treatment. Had a scan for first 2 years 6 monthly if I recall correctly. After 2 years went 6 monthly then annually after 5 years. It was my first cancer ( hopefully last). Not necessarily similar, mine was v large but not least aggressive so 4,1. 
I fully understand why you’re anxious about reoccurrence. If you don’t mind me offering a thought though, how will worrying help you if it does or if it doesn’t come back?. It might stop you living the rest of your life to the full though. Easy point to make, hard to do. there are many ways to try to manage anxiety which might help. 
hope that helps, reach out if I can assist further