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I I was diagnosed with a myxofibrosarcoma just below my knee in November 25. I had limb saving surgery in December 25 and 6 weeks of radiotherapy finishing at the end of March 26. I am still struggling with my mobility. I am a dancer and have been doing...
Hi! I'm new to the forum and wanted to say hi and see if there was any advice people could share with me. On Thursday my surgeon called to give me the news they found low grade ESS after an abdominal hysterectomy five weeks ago. She told me not to...
I wonder if anyone out there has this diagnosis, if so I'd love to hear from you.
My son has been diagnosed with synovial sarcoma in his voice box, unfortunately we found out today it has spread to his lungs, he is 28. I feel heartbroken, even more so because the way the oncologist delivers the news is dreadful. They encourage you...
Hello I had breast cancer and used that part of the community before. After a lumpectomy and radiotherapy I was given the all clear. Less than 2 years later I was diagnosed with angiosarcoma, I've had a full mastectomy with partial diep flap reconstruction...
Hi there, I hope it's okay to discuss surveillance scans. I'm hoping to get some advice if anyone has time. I had sarcoma cancer last year but thankfully it was treated. I need to get CT scans twice a year in case it comes back. Whilst discussing this...
So 3months after grade 3 complete tumour resection in neck...was at christies today to see about adjuvant radiotherapy,only to be told that mri scan 3 weeks ago,that I have a 5cm residual tumour..there is to be a meeting to discuss if surgery is feasible...
Hello, My dad is in his 80s and has just been diagnosed with a high grade spindle cell sarcoma. Seedlings have also spread to other parts of his body. He is struggling with the use of his arm. Getting treatment has been a real challenge with MRIs...
Hi, I’m 29, three and a half months postpartum with my first child, and last week was initially diagnosed with a well-differentiated, large liposarcoma. The tumour was found by chance in my abdomen area after an emergency c-section, which I am so thankful...
Hi everyone, I am new to this group, new to cancer and new to everything about it. After 3 months of what I thought was very painful sciatica, I did an e-consult to my GP, (only way to do it) She sent me to A&E….. twice, with 3 weeks of each other. The...
