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Hi all, I am new here. I had a tumour removed from my right lung nearly 3 months ago and the pathology report has finally been published. I was told it was a rare form of sarcoma called intimal sarcoma. I looked it up and am confused as I remember the...
Hi I’m currently awaiting answers for a large hard lump in muscle of right femur. I’ve had ultrasound, bloods and mri. On Fri I’ll have biopsy and see consultant. The pain used to be an ache at night but it’s now more severe and affects me in daytime...
I have had two ultrasounds, an MRI and a CT scan which have confirmed a 5.5cm lump near my bowel/potential connect to or in the bowel. They are going straight to surgery instead of a biopsy. Why would they do this? What kind of surgery can I expect? They...
Hi All, Original diagnosis of LMS in January 2021, thankfully NCD since. However I have a small lump on my tongue which is being investigated on 3rd January, anyone has LMS in the tongue? (Thankfully the lump in my thigh was just a fatty lump!) Keeping...
I have metastasis sarcoma in both my lungs I have an opportunity to have chemotherapy but my oncologist doesn’t know how effective it will be as it is very rare Does anyone know of anyone who has had chemotherapy with this condition please
Hello I'm 25 years old and recently found out I have cancer. I have been told very little over the last couple months but I think the doctors believe I have a soft tissue sarcoma in my upper right thigh. The cancer has spread to my lungs, spleen and brain...
I had stage 1b leiomysarcoma diagnosed in June 21.and had a total hysterectomy. In February this year two mets were found in my Iliac artery and one in my pelvis on my psaos muscle. They are inoperable and I've had 3 doses of doxyrubicin. Today I've been...
I had Liposarcoma . I can’t complain. Although I do but not out loud. I had surgery, it was massive. What I don’t understand after 3 years being okay. My last scan was clear and yet there is a massive black cloud hanging over me. I’m going to be monitored...
My 16 year old is nearly finishing his 9 cycles of chemotherapy followed by radiotherapy and another 5 cycles of chemotherapy. He has a choice of taking a 5 weeks break before the next 5 cycles start. My son wants to get over and done with it with no...
