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I was diagnosed with GIST amost 6 years ago now and after surgery to remove the large tumor on my small bowel and further surgery to reverse my ileostomy and to undergo a liver dissection to remove a large tumor in my liver I was given Imatinib. I took...
Hi new to the group. My son was diagnosed just yesterday with soft tissue sarcoma with a tumour in his hip either pressing on or attached to his bladder and kidney...this is all we know so far. He went into hospital 2 weeks ago after an accident in...
Hi, I am a 25 year old who has had 2 prior operations (first operation I was told it was a benign and it reoccurred again I was told it was benign. The last operation was this year in March 21st ). I have now been diagnosed with Synovial Sarcoma on...
Hi I’m new to group and am struggling to come to terms with fact I’ve had pleamorphic dermal sarcoma. I had it on my head and it has been removed 7 weeks ago. I have been told by two independent consultants it’s all gone, narrow margins were clear then...
Hi all, I had a primary sarcoma tumour removed from my right lung last November. A CT scan done in January came back clear and a PET scan done last week showed 3 new tumours, still in the right lung. It also showed a few cancerous cells on my kidney...
Hello, just came across this group while researching my cancer type. Hoping for some insight from others with the same diagnosis.
Hi there, I'm 55 and was diagnosed with Kaposi Sarcoma on the 26th February, but they do not know which of the 4 I have. I am due my CT scan tomorrow and follow up with my consultant on the 18th. I have purposely tried not to google this cancer until...
In 2007 my husband was diagnosed with a soft tissue Sarcoma. We were advised that as this was such a low grade and also the fact that they could not see the actual tumour when they split open his calf muscle, it would never come back. Fast forward to...
Hi is there a UK list of GIST specialists and GIST surgeons? Anyone recommend anywhere? thanks in advance
Well after weeks of tests and 2 biopsies as 1st came back inconclusive we finally have a diagnosis for my husband's stomach cancer he has a differential liposarcoma. As this has spread to his omentum only way forward is palliative chemo. Told it will...
