I had stage 1b leiomysarcoma diagnosed in June 21.and had a total hysterectomy. In February this year two mets were found in my Iliac artery and one in my pelvis on my psaos muscle. They are inoperable and I've had 3 doses of doxyrubicin. Today I've been told that both mets have doubled in size. I am starting doxetaxel and gemcitabine in two weeks. I have told the doctor that I want to try everything available. I'm not ready to due any time soon. Any advice will be greatly appreciated.
Hi Deborino
I've read your profile and you've got a lot on your plate. In terms of advice, are you also a member of the womb group
And also the incurables group
Living with incurable cancer forum - patients only
These are the links to the groups, they will increase the amount of support for you. The incurable group in particular is excellent, we are a lovely bunch of people who all know how each other feels, as we may have different cancers but we are all in the same boat. Have you got a Maggie's centre near you? They offer courses and groups, which will help you meet people and get advice re living with uncertainty. I hope these suggestions are of use to you and best wishes for your next treatment outcome.
A x
I am a Macmillan volunteer.
Macmillan Support Helpline
0808 808 00 00
7 days a week between 8am -8pm
Hi Deborino
Thanks for your reply. Best wishes for the counseling, it definitely helped me. I have also found that reading has helped me. These were especially useful
How to live when you could be dead by Dame Deborah James - this helped with aims, goals, daily living
Radical Remission by Kelly A Turner - although these outcomes are rare, it gave me some hope that I didn't have before.
Best regards
A x
I am a Macmillan volunteer.
Macmillan Support Helpline
0808 808 00 00
7 days a week between 8am -8pm
