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Hi On my fb page I am being as open as possible and I want people to talk about how my diagnosis has made them feel and I want the Cancer word spoken. Because I don't want anyone to feel like they need to hide, from me, or the cancer. Does anyone...
Hi. Has anyone experience of obtaining treatment outside of the uk please preferably the EU. Oncolytic virus therapy, RIGVAR, DCT etc - thank you
My husband has a de differentiated liposarcoma in his stomach. Only way forward is palliative chemotherapy which will be a 3 weekly injection of trabectedin and 3 weekly doxorubicin has anyone else had this treatment. Did you have to stay in hospital...
Hi I am currently awaiting further tests to confirm whether I have a liposarcoma. It's all been a massive shock because the issue I'd gone to hospital was a possible lung clot. I've been referred to The Royal Marsden, so know I'm going to be in good...
Hi, Today I got the results from my MRI and it is a sarcoma, I have a CT scan booked on Wednesday to see if it has spread. It is 9cm. And I am terrified, trying to process this is the hardest thing I've ever had to do. I am so scared of getting the...
Hi all, I am new to this site and very thankful to have found it. I would like to extend my best wishes and support to all on here affected by cancer. I'm seeking a bit of advice but I'm not sure if I'm even asking the right questions, to be honest...
Hi new to the group. My son was diagnosed just yesterday with soft tissue sarcoma with a tumour in his hip either pressing on or attached to his bladder and kidney...this is all we know so far. He went into hospital 2 weeks ago after an accident in...
Hi there, just checking in to see if there's anyone out there diagnosed with Well differentiated retroperitoneal liposarcoma. It seems to be an uncommon discussion here at the mo probably because it's slow growing and not aggressive unlike many other...
Was informed that I have a GIST on 20th March 2024, been referred to another hospital but still waiting to hear. They need to do another endoscopy with an ultrasound. It is only 10mm, but I am still worried. Any advice would be helpful
Hi I have been diagnosed with GIST. it is in my stomach. It is very small at 1.5cms. No biopsy has been taken due to size. Is there anyone who has been in similar position? I have a lot of pain which seems unusual. I wasnt thinking this was due to such...
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