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Hi - and what an amazing place this forum is. I have just been reading a few threads and am taking big breath and buckling in for whatever happens next. I am a 65 year old man and have just retired after a 32 year career in the fire service and the...
Hi everyone. This is my first post on here. After visiting my GP with a strange “bruise” on my breast, I was fast-tracked for further tests. Thanks to an incredible Macmillan nurse, I was thoroughly examined, ultrasound , mammogram and a punch biopsy...
I had a muscle sarcoma diagnosed in 2021. I had radiotherapy, chemotherapy, and my leg amputated. I always knew that my particular kind of cancer had a strong chance of recurrence. My notes say a 29% chance of getting to 10 years without metastasis, but...
During pregnancy my left leg became bigger than my right. After being checked for DVT twice, I was told I had a cyst and that this was an issue of swelling. I kept going back to the GP and was told various things mainly related to being post-partum, having...
Hello I’m new to this site and have never posted on any forum before. I’m the kind of person who sits back and reads every story to educate myself on what to expect on this journey. I feel fine but have mastitis to the lungs and will at some point have...
Hello I've recently been diagnosed with myxofibrosarcoma (MFS) in my arm. I've had a slowly-developing swelling and bruising on my arm for the last three years, baffling everyone I've consulted until a biopsy identified MFS. This has been a bit of a...
Hey there! I'm just starting this as I'm 19 years old and have already had an ultrasound (they said it was a fatty lump) then got sent to a MRI who also suggested it was a fatty lump but quickly moved me to the Suggested sarcoma diagnosis. I have a...
Hello - hope this note finds you well, and knowing that you are not alone. Saying hello and looking for moral support, please… Results: My husband has been diagnosed with spindle cell sarcoma a couple of weeks ago; after suffering sever nerve pain...
Hi, 61 year old and just recently received this diagnosis. The primary has metastasized to my pelvis causing me considerable mobility problems. Awaiting more tests, radiotherapy and chemotherapy. Has anyone here had similar? Thank you in advance. Pat...
Has anyone had their tumour tested for presence of B7-H3 please and if so where did they send it to get it tested? My 13 year old daughter has a rare round cell sarcoma and we are looking at potential trials for CAR T. One of them is in the US and needs...
