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Hi new to the group.

My son was diagnosed just yesterday with soft tissue sarcoma with a tumour in his hip either pressing on or attached to his bladder and kidney...this is all we know so far. He went into hospital 2 weeks ago after an accident in work caused his leg to swell triple it's size and then they found this so maybe the accident was a blessing in disguise I don't know.

He's only 21...he's my oldest boy. I am trying to keep my head together but it's hard and waiting for a treatment plan is killing me 

  • Hi  

    I'm very sorry to read about your son's recent diagnosis and I know how hard something like this is for the whole family. Hopefully once he has a treatment plan you'll all feel more in control.

    I'm not a member of this forum but I'm sure the members here will be happy to share their experiences with you. Having responded to you it will 'bump' your post back to the top of the discussion list.

    Sending virtual ((hugs))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hello my daughter has a metastatic soft tissue Ewings sarcoma from her pancreas.  Diagnosed in March 2023. She’s under the care of the Churchill hospital in Oxford - a specialist sarcoma unit.  She had 14 cycles of chemo - very intense- and 20 sessions of radiotherapy.  The tumour at its largest was 20cm now 4cm.  Her latest scan shows things are stable.  As a parent it’s a terrible situation to be in.  I hope your son has a plan in place by now & is being treated in a specialist sarcoma unit.