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Hello Everyone. I'm Flogo and I was diagnosed multiple myeloma on the 6th April 2022. At the moment im on watch and wait. However I'm getting rather concerned. My paraprotein was 37 then went to 41, my biopsy was positive, my light chains, well...
I was diagnosed with multiple myeloma on 11th May 2021 after a stay in hospital with kidney infection. The myeloma was picked up through blood tests during this stay. But I had been suffering with a very painful lower back for at least two years pre iously...
I was recently diagnosed with mgus I was unwell for a few months before deciding I needed to see my gp I just felt very tired and had no energy I had this horrible pain in my lower back and pelvis i have this pain daily cant even describe the pain its...
Has anyone with Multiple Myeloma ever asked their hematologist to start treatment rather than wait for it to get worse enough to start treatment? Their decision) ?
Hi all. I'm just coming up to the end of my 2nd chemo cycle of Velcade, Dex and Thalidomide. I am hardly sleeping at all, I am told because of the Dex, is this right? I can't believe how much sleep I am missing out on, it's crazy!! Has anyone else got...
Hi everyone, I was wondering what people's experiences are in relation to returning to work post treatment. I'm 46 and was diagnosed in January 2021 and since then have completed 4 courses of chemo, a Stem Cell Transplant in January 2022 and 2 more...
Hi I'm new hear, my Dad has recently been diagnosed with Myeloma. We are coming to terms with it but, can't get our heads around how quick he's deteriorated. He has lytic lesions on his skull his p vis hips, 2 vertebrae are fractured and the list goes...
I’ve just had my 65th birthday,very happily married and looking forward to a long and happy retirement On the 1st May I went to A&E after weeks of worsening back pain . I was told I had myeloma that evening. A week in hospital a week at home , chemotherapy...
I have recently been diagnosed and in shock I know they have good treatments but I’m so scared
New here, was diagnosed with multiple myeloma 18 months ago, wanting to know how I can get transfered from the hospital I'm being treated at now to LGI . Already asked my GP no help so that's not a option. Any advice or place to point me to would be appreciated...
