Hi Jenbee33 and a warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed back in 1999 with a rare, incurable type of NHL Stage 4a so although my Blood Cancer ‘type’ is different I understand the challenges of this journey well.
I am so sorry to hear about the challenges you are having. Often once you get diagnosed with one thing.... more things come along but lets look for you to get some clear answers soo.
There have been a few new folks joined this group over the past weeks so let's look for them to pick up on your post. If you hit this link Myeloma it will take you to the group home page and this is where you can look through the other posts and as always you can hit reply to any post and connect with others.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear and our Cancer Nurse Team in our Ask an Expert section may be helpful but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and do run Hematology Support Groups.
Always around to chat.
