I'm in my first cycle of ISA-VRD and - having encountered no significant side effects after a few days - decided to try some light exercise on the treadmill at the gym, which I was previously doing regularly. I very quickly developed tightness in both...
Hi, My husband is due to be admitted to Clatterbridge on Monday. He is very worried about the Picc line being fitted and the chemo. Can anybody offer any words of wisdom please?
Hi I care fory husband with Myeloma. He is waiting for a transplant and we keep letting put back, I realize so many are on the waiting list, but his whole cancer journey is now in its second year having been passed from one hospital to another. We...
I’m being admitted on Wednesday to have my SCT any tips and advice would be appreciated
Hi all. Does anyone else have the same experience as me and how did you cope. I was on a trial but it was unsuccessful. My SCT failed and the treatment was deemed too strong for me so I was removed from the trial. I have been put on the lowest maintenance...
Hello. I just joined the group and I am a caregiver for my Brother who was diagnosed with myeloma in Dec 2021. Since diagnosis he has been doing quite well until this past month. If I could please explain the history and receive your feedback and input...
Hello folks I'm new here and would be grateful to know how people cope with fatigue and any suggestions how to counter it. After 6 months treatment I moved to a maintenance cycle on 1st July, treatment has been very successful but I'm experiencing severe...
Hello Everyone, I started finally The chemo on Tuesday, the 17th of February with the protocol that includes daratumumab, dexamethasone and Lenalidomide. I have a bunch of other pills that I take one to protect the stomach the other one anti viral the...
I've read a lot of the diagnosis stories from members on here and have talked to other patients and it is clear how many of us have had a long period of treatment and investigation for one of the symptoms such as back issues before getting to the Myeloma...
After three doses of Elranatabaman, I've developed very severe side effects. I wonder if anybody else has had similar experiences
