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Hello, I am new to this group and I’m looking for advice. Last October I was diagnosed with IgA MGUS bordering on Smouldering Myeloma. This is obviously of great concern to myself an my wife. I have joined this site in the hope that I can contact other...
Hi, I have recently been diagnosed with multiple myeloma and have 3 children. I struggle when I think about my diagnosis, what the future will hold, the effect of the news on my husband and how and when to tell my children. How have other people coped...
Hi there New to the group. Dad got diagnosed last year, and since then we have nearly lost him 3 times. Not through the cancer but by other things as he has such a low immune system now. Been coping up until this point, but two weeks ago I literally...
Does anyone find themselves really tired with this.i went on a motorbike ride yesterday with the blessing of my doctor to keep my spirits up.However today I was in bed until 1.oo aching allover and worn out. This afternoon I've pottered around and find...
Hello everyone, first time on hear after my diagnosis on Thursday. Feeling numb,angry,scared .Treatment starts on Thursday and thought I'd feel better knowing what is involved but if anything feel worse. Where do you find the strength to get through this...
Hi there, I'm a wife of an amyloidosis sufferer, and we’ve been given access to a macmillan nurse from our hospital, but here on the website Myeloma is the closest illness available to select. Is there anyone here dealing with amyloidosis, or being...
Hi All, My husband was diagnosed with Myeloma after spinal surgery in December , was then found to have Lung cancer as well. , and he had a Lobectomy in February . He has now started Chemo treatment last week for this. At present not treating Myeloma...
Hi,any one got any tips for aching/throbbing calves while on chemotherapy?
Hi everyone, this is my first post. I was diagnosed with Multiple Myeloma in January and started my chemo in March, 2 doses so far. I am on Velcade, Daratumumab, thalidomide and Dex. I am struggling with nausea and have tried 3 different anti nausea meds...
Hello, I'm caring for my Dad. He's experiencing pain whilst sitting due to low bone density in his pelvis but he doesn't want to stay in bed all the time. He has a riser recliner chair but can't manage more than an hour in it now before it gets uncomfortable...
