Recently diagnosed with myeloma

Hi, I am also 65, with myloma I was diagnosed dec 2020, but mine started with a trip to ENT specialist due to a severe nose bleed that was also bleeding out my mouth no warning nothing, anyway couple months later in. 2021 was told I had multiple myeloma and been dealing with that ever since, would love to chat don't know much about this site and how to chat privately (maybe a moderator can point us in the right direction if you are interested in doing so)

Stay strong and fight the fight, you will get passed this stage, and the next and the next LOL

Sue

1. Sorry forgot to add, I'm also happily married we just celebrated our 42nd anniversary, been through all the stages you mentioned with the myeloma, and still do from time to time when the nasty thing pops up somewhere else, the bone pain is unbelievable as you must now know,
2. I have it in my sacrum, leg, arm, shoulder,  and although I've not told the hematologist yet so it's not been confirmed bit I'm thinking I might have it starting in my lower back as I'm having lots of back issues the last few weeks, but that's not been confirmed by the hematologist yet as I haven't told them yet.

Hi Suby

thank you for getting in touch . Like you Im unsure how or if this will work . I hope meeting, although we are strangers that in sharing some of what we are both going through may help !

if you think it’s still a good idea please keep in touch . If you do I’ll tell you although not that interesting, a little about me and my story we can take it from there 

Do you know if anyone can read this 

H 

Yes would love to chat more preferably via messenger not that I have anything against this but I'm not sure how many people can see/read our posts.

I can tell  you all about my journey so far, and see if it helps and you can tell me all about your journey so far.

In the mean time here is a bit of good news, an old friend way back when has a uncle who has myeloma he was given 12 months to live but with advanced treatment etc he is still going strong after 12 years..so hang in there and fight the fight..

Okay this is the third time I have tried to answer this person and it will not post it aarrgghhh..

Anyway H yes would love to keep chatting, but I also don't know who can or cannot see our posts on here so would prefer it to be more private, I have tried to include my email address on here but for what ever reason it will not post my posts when I do

Going to try and contact a moderator see what can be done..the world does not need to see All our messages.

Stay strong, fight, fight, fight

Highway1 I have requested a friendship thing with you, after speaking with the online chat help people they said that's the way we can talk privately.. hopefully we can go from there, I don't know about you but I'd rather not go into to much detail on this forum not that I have anything against it.. but I have found with this myeloma sometimes you just need someone/ a friend to reach out to more privately if that makes sense? Qhen needed..