Morning all. I have recently been diagnosed with Myeloma and start chemotherapy next week. To say I am very apprehensive is an understatement. I live alone having lost my husband in 2019 and feel very alone even though I have supportive family and friends...
Hey fellow warriors, I’m a newbie to this group, not to MM unfortunately :) 54year old female, diagnosed December 2024 after fighting with my GP for 18 months. I had gone from running and boot camps every day to struggling to shower and walk upstairs...
Hi there, I am 57 and was diagnosed since 2019 with myloama. I had all type treatment and gone through all type of side effects, but since 7 months I haven't had any treatment. I'm just going through to some anxiety and also lack of sleep I guess that...
Hi, I’m Fay, I’m 58, I was diagnosed with MM back in 2021 after a fall discovered a lesion in my elbow. I have since had chemo, radiotherapy and SCT. I was in remission for over a year then started getting pains in my back, took 6 months of telling...
Hi I'm a 72 year old man who's recently been diagnosed with myeloma, after several years of my blood being monitored with no previous cause for significant concern. I'm due to start treatment (Isatuximab, Velcade, lenalidomide, dexamethasone) in a couple...
I’m hoping to get some perspective from others with experience of MGUS/myeloma, particularly around ongoing symptoms despite reassuring investigations so far. Background / timeline Summer 2023 • I began developing a number of ongoing symptoms, including...
I have had a terrible few months. I went to GP in February this year with very strange neurological symptoms of burning numbness of the feet tingling across the back. She did loads of blood tests nothing much showed up. Because I had lost weight and...
I commenced Darzalex at first relapse January 2023. My main side effect was indigestion. I have suffered with reflux for years, but this felt different. Severe bloating, abdominal pain and no appetite. No respite despite experimenting with various antacids...
Hi everyone, My partner has lived with myeloma since he was young, and currently going through a round of chemotherapy. I think because he's had this since he was young, he's very independent about all of it, and doesn't tend to what any physical support...
Hello everyone, I'm new to the group. I was diagnosed in March, following a fall which broke my leg. Chemo started in May, and is currently suspended due to side effects. I feel well, though, physically, but over the last week have struggled with the...
