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Well last week I couldnt see myself making it into week 4 but I am more mentally prepared for it. I still have a mouth full of sores and ulcers, and the saliva has definately thickened up and become cloudy. I have a complicated drug taking routine which sees me alternating between paracetamol and diflofenac every 3.2 hours, with a 2 to 3 ml of oramorph every 4 hours. It does allow me to get some sleep but I still wake up every couple of hours and need to clear my mouth out. That's where the Caphopsol...
I was told by my consultant a few month's ago that I would most probably end up Impotent. well tonight I did some thing I thought I would never do. but first some back ground. I had been worried about Impotency and It has been well over a year since any Intimacy between myself and my wife has taken place " she Is afraid of becoming radio active" because of the radio therapy. It was the same when I had the defib put Into my chest. "she was worried about being electrocuted"... ...
Being made redundant at the end of December was a big deal. After all, I'm a careers adviser. What's that all about? I should have given myself better advice that's what.
Then that day in January where we decided enough was enough and after 24 years together the show was over. We had to put the house up for sale and get on with our lives. But wait, the girls aren't coming anywhere with me. No its my fault so that's that!
Sat watching tele on march 20th. Everyone in bed and not...
Had my first scan after 8 weeks of Vem. It went as well as can be hoped so good news... All my tumours shrank and the consultant oncologist was really pleased.
On the negative side, after 8 weeks of Vem I was in a bit of a mess with side effects and could hardly walk. I am moving to a schedule of 3 weeks on and one week off the meds for now to see how I go but have applied for a blue badge anyway as it has made travel and getting around very difficult.
Had a few warts removed, including one on...
Hi everyone so I haven't been here for a wee while. Dad had his mri and it came back that the tumor has grown only 5 mm though so not super fast. However we are noticing a lot of confusion and he had a fall the other day trying to get into his chair he said he didn't think it was a seizure he just felt faint. He is also on morphine now as paracetamol no longer works to rid the headaches. They are putting his steroids up to 4mg now. It's so sad watching him walk around with his sick bowl it's like...
So the CT scan happened yesterday after the 4th round of chemo. We're still waiting for special to send some inof through about what happens if you stop at 4 rounds as opposed to 6 and to be fair I'm not holding my breath for an answer. This of course is making it a very real possiblity that M will withdraw consent next Tuesday and tell them where they put their poison - I'm quite looking forward to the meeting as so far they think I'm the one they need to pacify - how wrong can they be!...
