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It feels a bit funny writing this blog, which will be seen by strangers and the few of my friends whom I've told about it, rather than giving my news to my family and friends first. When the news is not good, you're not exactly in a tearing hurry to impart it to all and sundry. But I want to talk about it, which is where this blog comes in helpful. And I don't really mind if no one reads it!
I had a CT scan last Monday at the Christie. I was in a lot of pain that day, and had had 6 days...
After over seven years of having cancer in mine and my husband's life, I finally feel it's time to de-stress a little and see whether writing is therapeutic way of managing all the thoughts in my head (so sorry for all the babble!)
Way back in 2007 when months and months of misdiagnosis happened and FINALLY the diagnosis of my husband's brain tumour was made, we both started this journey together that in some way feels like a whirlwind that has gone quickly but in other ways feels like that...
Didn't have too bad a night last night. Still waking up every 3 hours to take my various medicines, and dealing with the dry mouth/ saliva issues but am getting back to sleep very quickly. The Dr had said I would need to increase the oramorph up to 5ml this week, but I'm still getting by on 2.5ml, along with the Paracetomol and voltorol.
I went into work yesterday, by train, and ended up having to walk back to the train station because the bus was full. By the time I got home I was shattered...
The weekend seems to have been a good break, although the skin on my cheek/ neck is still very tingley.
It was really tough getting the mouth piece in today, and the fit of the mask is quite tight, but I can just about put up with it.
Saw the registrar rather than the consultant today with the nurse and the dietician. I still weigh the same which really surprised me when I think about how much rubbish I was eating before and now I'm just limited to the ensure. They clearly are packed with everything...
My wife is my carer, we have been married just three years when I got my diagnosis. We asked no one, no one at all for help. However a representative of macmillan came forward and offered support, guidance and help. My condition deteriated to include kidney failure, pneumonia and a collapsed lung. This was all treated in a hospital ward. While there the macmillan representative called by for perhaps 2 minutes. While she was there I explained that my wifes 82 year old mother had had a mastectomy the...
After finally getting some info of some use from special I think I've persuaded M to complete the chemo course, basically because it's the right way to go and I can't be bothered with going through this again because he didn't have all the rounds.
So I actually managed to speak to special this morning and what an eye opener that was. Out of a twenty minute conversation I think 15 of them were spent with me teaching her about psychology of patients and how to not steam roller people...
I think its all just starting to hit me and now not sure what to do with the emotions and what to do with myself.
Just wondering if anyone is/has gone through the same process of finding out what is right activity levels for them and any tips on how to do this.
