CT Scan done - what happens now?

2 minute read time.

So the CT scan happened yesterday after the 4th round of chemo.  We're still waiting for special to send some inof through about what happens if you stop at 4 rounds as opposed to 6 and to be fair I'm not holding my breath for an answer.  This of course is making it a very real possiblity that M will withdraw consent next Tuesday and tell them where they put their poison - I'm quite looking forward to the meeting as so far they think I'm the one they need to pacify - how wrong can they be!

In his head it's all over so we've had a bit of normal going on and I have to say it's been welcome, he's back to winding me up and taking the proverbial and generally just more like M.  He went to drop our little girl off at school today fully intent on making one of the teachers cry when she saw his bald head - that's the M I know and love.

Had lunch with a 'friend' on Tuesday that I haven't seen or heard from since round one, what a barrel of laughs that was, not only had she brought her children with her to our catch up she displayed the most amazing lack of common sense I've witnessed for a while.  Her son saw a picture of M on my phone and asked if he's had his hair cut that short for a reason (he's 8 so I'll forgive him) and then she sat and went 'ooh has his hair come out?' followed by 'it's only a few weeks out of your life it'll be done soon and he'll back to normal' like he's going to have his last round of chemo and come skipping out of the ward like nothing's happened.  When I pointed out that chemo is cumulative and it will take months and months for him to feel better her jaw dropped and she then said 'it will fly by'  Oh my word, I left them early having said no to dessert and went back to work.  All this from some-one who has a husband with a lump that is causing pain and getting bigger and she hasn't done anything about getting a gp appointment to follow up for him.  I sincerely hope it's not cancer that he's got as the poor man would be well and truly buggered if she was looking after him.

Our daughter is well and truly a chip off the old block, she was at the stables and the children were all talking in the tack room about the various illnesses their parents had, one had a Mum who'd had a nasty 24 hour bug and another had a dad with hayfever etc.  Our little darling on her turn said 'my dad's got cancer' Blantant as you like with not a care in the world and silenced the lot of them, the owner of the stables told me about it while laughing at how much like me she sounded. 

That's us at the moment, back to school today for little M, work for me and big M and wait and see on the scans

xx

Anonymous
  • FormerMember
    FormerMember

    Hello Helen, glad you've been able to enjoy a bit of 'normal'.  Horrible waiting for scan results, isn't it?  I had one on Monday and have to wait till 18th to see the oncologist and get what I suspect will not be encouraging results - that's a long time.  Yes, one does wonder what a difference it makes stopping the chemo before the end.  I had my 8 cycles stopped short at 7 because they said I couldn't handle any more.  When I asked, I was told that it wouldn't make much difference - makes you wonder why 8 were recommended in the first place!

    I think we should probably cut 'friends' like the one you mention a little slack.  They have absolutely no idea what M, or any of us, is going through.  And how can they?  I bet she was just trying, in her ignorance, to cheer you up, in the only way she knew how.  She clearly doesn't know how feisty you are!  But I do recognise your reaction - I'm ashamed to say that sometimes I silently think, when confronted by someone like your friend 'just wait till you get cancer!'

  • FormerMember
    FormerMember

    Hello,

    From what I can gather 5 and 6 are a bit of a mopping up exercise to get any stray cells and while I think it's worth getting everything in one go it's not me going through it so I can fully understand where he's coming from.  I have more than a suspicion that the scans will come back clear as he's had a really good and quick reaction to the chemo and no-one can feel the lumps now and at the beginning we could see them they were that big.

    I think you're right when it somes to cutting some slack but sometimes I get to a point where I've cut so many people such a lot of slack that I can't be bothered to make them feel better any more, it's the impatience in me I suppose.

    I really hope your results aren't what you're expecting and are better than you think but you're right it's awful, time seems to go on a go slow when you're waiting for those results while the rest of the time it just flies by.

    Send you best wishes for those results

    Helen x

  • FormerMember
    FormerMember

    Have you tried looking on google scholar for scientific papers Helen? If you try a search like "4 cycle" "6 cycle" r-chop (i think thats what you said he was on) you might get some studies into it. I have to say when i was looking into john's treatment there don't seem to be any hard and fast answers. Good luck with whatever you decide and most of all bestest bestest luck for the results xxxx

  • FormerMember
    FormerMember
    Hi No not tried that but I will thanks. M is so much better now in his head it's over. Got everything crossed for the scan results xxx