Blogging can be a great way to journal your experiences and share with others. Why not create your own cancer journey blog, or have a read of other blogs created by our members?
Unsure how to get started? Take a look at our help pages on blogs.
Hi im due to have surgery for my tumour removal and was just wondering if anyone has been through this and can give me advice. I have been told ill have a temporary ileostomy bag and a catheter as i have to have part of my bladder removed to get a clear margin.
I really couldn't be bothered with Xmas this year... Something I didn't mention in the previous blog was that Dr Dhinakaran had asked me to chase up my previous chemotherapy notes to find out what had gone on.. Which I'm my bewilderment I'd agreed to do... And then managed to get hold of my key worker and his secretary to recind... How odd.
I think this sums up my frame of mind... Befuddled to the point of stupid... I'm not sure who I am... What my objectives are... What my purpose...
So this was my first exposure to oncology and I have to say... Rather bewildering... I'm going to generously put his lack of preparation down to it being 23rd Dec and his assuming that I was a simple case to get booked in... But to say that the interview was disjointed was an understatement...
I am happy to accept that specialist doctors are sometimes not blessed with the best Bedside manner and am going to assume that there are enough people there to know what's going on... But... He...
When I first had the diagnosis I was expecting the bad news having done some background research; I think this numbed the impact of having to look it in the face and do something about it... If at all possible...
Clearly there are a number of outcomes, none of which are pleasant and I had to haul myself in on the catastophisation... And concentrate on going through this a step at a time...
Consider also that people who are close to me will be deeply affected by the process and outcomes...
Made it.... Made it.... Made it... Got to 50 and then the year anniversary of diagnosis...
Lucky, lucky me.... So why do I not feel full of glee...
So very long staying positive, determined and strong...
So very many hospital appointments smiling and even having a giggle...
So much humour and kindness to give...
So little time to feel the enormity and move through the trauma....
The all consuming Chemo over and done with, hardest part over you'd think...
Ha, fooled ya, the worst is to come...
...Saturday 7th January.
I am sitting in bed writing this blog, absolutely shattered, I only got two hours sleep last night as my husband and his friend got back from their 'couple of drinks' last night, or should I say this morning at 1am. I was so pleased he went out as he's been amazing lately, and really deserved a night out, but I sat up waiting to see if they needed me to collect them as we live a little way from our local town and the taxi service isn't great, by half past midnight I gave...
Hello. It's Saturday night and I've just joined the community. Feel a bit lost as not seen anyone yet since diagnosis. Going for MRI scan tomorrow. Will be seeing plastic surgeon on Monday. Had what I thought was infected haemmoroid but biopsy revealed melanoma. Being as positive as I can but still been a massive shock. Didn't think Melanoma affected places where sun doesnt shine! Just shows how ignorant I am. Already had CT scan last Thursday so am in system. Just have no idea of extent of reach...
My wife been diagnosed with bowel cancer with secondary cancer to the liver , spleen and lymph nodes on the 29th december we were told at a meeting with the surgeon who carried out the colon removal that it is terminal due to the places it spread to. Tthey are dumbfounded by the cancer in the spleen as they have not come across it before, however we did have a car accident in August 2015 which caused a lot of bruising to her abodmen so they think it could have come from that.She is having her PICC...
I have been diagnosed with breast and lymph node cancer. I had my operation back in September when I had cancer removed from my breast and 10 lymph nodes removed. Since then I have had 4 cycles of first stage FEC chemotherapy and was to have gone on to second stage if FEC but have now found out that I have further cancer in a lymph node, This has understandably made me worried and I have felt quite low, Up till now I have been quite positive. I thought if I joined the community I might be able to...
Not feeling myself today… tired but fidgety, my normal sunshine mind filtered by gloomy clouds, allowing only a few rays through. It reflects the internal struggle going on…my positive energy has a fierce competitor at the moment - lazy, can’t be bothered, self pity.
To be fair to myself, I haven’t had the best of news this week - my tumour does not seem to be responding to the EC90 chemotherapy. So I’m now scheduled for another breast MRI and CT scan on Monday and in all...
