Blogs

Latest blog updates

• WJ grade 3 Astrocytoma cdkn 2a/b

  W J 11 hours ago
• To Hop-on or Hop-off is the question?

  Mr U 15 hours ago
• Living with Desdemona

  Desdemona 3 days ago
• Community News

  This is a place where you can read about everything that's happening on Macmillan's Community. From guest stories, to sharing awareness months, here is where you'll hear about all of the latest from Macmillan's Community.

  Lizzie - Online Community Team 3 days ago
• Multiple Myeloma

  Tess123 9 days ago
• Mumofcancer

  Mumofcancer 16 days ago
• One Step At A Time

  Phild26 17 days ago
• Cycle 19 and not working anymore

  Emotions 18 days ago
• Warm your teaspoon

  Mrs of husband with bowel cancer - T3 N1 - chemo to be followed by radio then anterior bowel - depending what they find. Oxaliplatin and Capecitabine being the prescribed drugs. `

  Sierraoscar 19 days ago
• Pete's cancer blog

  Peterb 24 days ago

Latest blog posts

• WJ grade 3 Astrocytoma cdkn 2a/b

  Maggies

  Went to a maggies session, something to see how others are. I felt young there. Mixed personalities did get to me as one person butted in on everyone. Was annoying. But nice to see fellow patients and what they’ve been through. I enjoyed it exc...

  W J 7 months ago
• 

  To Hop-on or Hop-off is the question?

  Post 275: Meeting expectations.

  Post 275: Meeting expectations I spend a lot of time on my handheld phone reading posts and replies on the Prostate section of the Macmillan online forum, and I try my best to help with other people’s queries. But more and more I find myself f...

  Mr U 7 months ago
• Active surveillance a journey to where…

  Results day…where are the blue flashing lights

  It felt like a race against time.  From the moment the referral letter was sent to the post MDT appointment it felt as if the medical staff knew every hour counted. As if even a one day delay could reduce my lifetime.  Friday afternoon lett...

  JohnPM 7 months ago
• (Cancer) Garden journey day by day

  Not counting, but watching: surveillance

  January brings a new phase, now post-chemo, some welcome healing as side-effects from Capecitabine slowly ease, but it's now a matter of being monitored and self-awareness of my own body.  It's a gradual detachment from the wonderful clo...

  WalkerGirl 7 months ago
• I have a Cancer

  I have a Cancer - 8

  In the meantime, I continued to lose weight, fart more regularly and have runny Poo containing some blood.  I had not had a follow up call from the hospital so rang them and left them a message. I also called my surgery.   My surgery sugges...

  Soglio 7 months ago
• 

  To Hop-on or Hop-off is the question?

  Post 274: Oh yes we’re not!

  Post 274: Oh yes we’re not! The local players are playing up to the crowds this week and, as a nice surprise, my Darling is taking me Wednesday evening — oh no she’s not! This will be the first time out since Christmas so I’...

  Mr U 7 months ago
• Active surveillance a journey to where…

  The waiting game…PSA monitoring anxiety.

  Data first, drama second.  PSA monitoring on active surveillance is a bit like running. You know your PB, you’re desperate to beat it, can it be lower this time. The expectation creates anxiety. Having control of the data helps. I&rsq...

  JohnPM 7 months ago
• Active surveillance a journey to where…

  The post MDT appointment …a grey area

  The longest wait comes to an end. Three weeks and two days after the biopsy. And three days before Christmas I get the biopsy results.  PSA 13.2 PSAD 0.33 T2c 3+4=7 with PNI pattern 4 10% longest length 14mm. 10 out of 15 cores p...

  JohnPM 7 months ago
• Active surveillance a journey to where…

  The biopsy…a training opportunity

  The MRI went well. An out of hours late evening appointment just 4 days after the referral letter was sent. Neither nurse could get the cannula in. I gave them five attempts then in the machine for a bimetric scan. Just 10 hours later a phone ca...

  JohnPM 7 months ago
• Active surveillance a journey to where…

  The phone call…was anyone going to tell me?

  I called the receptionist. As usual asking barrier questions to my queries. I then asked for the practice manager to call me back and explain why the surgery was not following NICE guidelines with regards to cancer pathways. That cut through the chat...

  JohnPM 7 months ago