Terminal lung cancer patients

Hello Hovis1957 

A very warm welcome to the online Community - although I am so sorry to find you joining us. The Community is divided up into cancer specific groups and to "meet" others on the same or similar journey I would advise you to join these groups:

Lung cancer forum 

Supporting someone with incurable cancer forum 

There is also a group your husband could join but he needs to sign up and create his own profile for this and the link is here:

Living with incurable cancer forum - patients only 

To join these groups, click on the links I have provided and when the page opens up click on "join" on the black banner at the bottom of the page. Once you have joined the groups you can introduce yourself in the "New Here - Say Hello" section. You can copy and paste or repost your original post from above.

I hope the above helps.

If you need any help in navigating the Community please do get back to me.

Best wishes - Brian.

hello this is my first time here my husband Michael has stage 4 Cancer I am so frightened, its

I hear your struggle and share your pain its the most tormented feeling I have ever experienced in my life. To love someone and feel so helpless is sheer madness. There are no easy answers only days that are give respite, but even they torment as the bad days return so quickly. I am feeling so guilty as the partner of a cancer victim. There are legalities to be dealt with for my survival after the inevitable day comes when he dies, to talk about and complete paperwork needed is destroying me. Please advise me

64 years old i was diagnosed about 3 months ago with lung cancer i have begun my immunotherapy and going into my 3rd lot of treatment soon i get what you are saying regarding your hubby's tongue i get similar i have been having a burning mouth and also my tongue looks as though it has been sliced with a razor blade and fed up telling doctors about it this was happening before diagnosis so i guess it is all part of the illness i was told that chemo was not an option as the cancer is too close to my heart and also too close to my spine of which is affected with osteoporosis im starting to not trust my g.p after he made a phone call to me asking where do i want to die at home or in hspital ....thats right you read that right ...it put myself and my wife back to day 1 when i found out that i had cancer through the nhs app and not through my doctor and again you read that correct and now i have uninstalled that nhs app surely before stuff like this is posted on the app it should be delayed until the patient is informed by somekind of medical expert .....i wish you all luck in the future thanks for reading