Active surveillance a journey to where…

  • Results day…where are the blue flashing lights

    It felt like a race against time.  From the moment the referral letter was sent to the post MDT appointment it felt as if the medical staff knew every hour counted. As if even a one day delay could reduce my lifetime.  Friday afternoon lett...
  • The waiting game…PSA monitoring anxiety.

    Data first, drama second.  PSA monitoring on active surveillance is a bit like running. You know your PB, you’re desperate to beat it, can it be lower this time. The expectation creates anxiety. Having control of the data helps. I&rsq...
  • The post MDT appointment …a grey area

    The longest wait comes to an end. Three weeks and two days after the biopsy. And three days before Christmas I get the biopsy results.  PSA 13.2 PSAD 0.33 T2c 3+4=7 with PNI pattern 4 10% longest length 14mm. 10 out of 15 cores p...
  • The biopsy…a training opportunity

    The MRI went well. An out of hours late evening appointment just 4 days after the referral letter was sent. Neither nurse could get the cannula in. I gave them five attempts then in the machine for a bimetric scan. Just 10 hours later a phone ca...
  • The phone call…was anyone going to tell me?

    I called the receptionist. As usual asking barrier questions to my queries. I then asked for the practice manager to call me back and explain why the surgery was not following NICE guidelines with regards to cancer pathways. That cut through the chat...