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Dad was in so much pain this morning he had already taken all of his meds which turns out is much more than i was lead to believe. We had to call the hospital and they wanted me to call an ambulance but he refused ... in the end i had to drive him, god every bump in the road went through him like a shockwave it was the worst 20 mins of my life seeing him in that much pain.
Any way the hospital have pretty much tripled his pain medication and have put out an urgent call for a pain management specialist...
Hi there,does FEC make anyone breathless? I'm sure that can't be good! Nurses don't seem too concerned though.Baby has dodgy stomach and my son has chicken pox, so it's all fun and games here.Also hanging round the GPs surgery has given me a lovely cough.Am taking my 'emergency antibiotics', they worked like a miracle!
After FEC am having 12 weekly sessions of Taxol to be combined with Herceptin.Anyone had any experience of that?
hugs and greetings to all!
I would be glad to never have a barium drink again. A litre in an hour is pretty heavy going. What's more, I had to have a barium injection too and the radiographer couldn't get into the vein on the first arm so had to go to the other to get it to work. I am now the proud owner of twin bruises. How symmetrical.
That said, I was very happy to get the CT scan done today (14th). I did my assertive patient bit on Friday and called the X-ray department myself to get the appointment. Left to them...
The weekend focused on a couple of family outings for the girls. The highlight was the Stony Riverside Fair. We were just approaching the first small roundabout when gorgeous daughter 1 spotted her first of many friends from school. It was all very sociable.
There aren't many things to go on at the fair, but there are enough for the number of people. And considering it is all free you really didn't have to wait long at all. Except for the facepaint where P waited very patiently in the queue...
I was pleased to be phoned by the MRI Unit and the Colorectal nurse co-ordinating my care on the same morning that I received the confirmation (over the phone from consultant) that it is a malignant tumour.
I had the MRI scan yesterday two days later (10th). I think this was particularly for scanning the pelvic area to build up a detailed picture of the tumour and neighbouring tissue. For anyone who doesn't know, you have to lie still and it's very noisy. It felt a bit weird but was painless....
On 2 June I had a flexible sigmoidoscopy to investigate rectal bleeding. There had been an assumption that this was related to piles which first appeared during my pregnancy with gorgeous daughter 2 (a common pregnancy condition after all). In retrospect it is difficult to remember when the symptoms changed, but by the time I had the internal investigation I wondered if it might be something else.
But, I never expected the consultant to say that I had a growth and that I should prepare myself for...
Hi hun, been watching the world cup for you...must keep in touch for the boys so that I can talk to them about it. That was always your pleasure. I am so upset today again. I try so hard tokeep a brave face for everyone. I miss you so damn much. I miss your strong arms around me. I miss you saying that you love me. I cant see the keys on here to type for crying..hope you are ahppy if you are any where...I have such a huge pain in my heart for you that I sometimes cant bear it. I wonder if I can carry...
Well folks, what a year, break up of my marriage, my ex still going through really tough times with his advanced prostrate cancer, but just to say although good comes out of bad most times!!we still have to show and give our support to those that are still living with the pain and misery of their illnesses..so just sending my thoguhts & love to those that may at this moment in tme be going through tough and challenging times..my best wishes and thoughts go out to you allXX
HI everyone...
the wound is a lot better now and today i can honestly see a light at the end of the tunnel. Lyphoedema is my next battle but as for the wound its close to healing. they think another 2 weeks and it should be dry and i can finally get into a lympho stocking...
so we are still doing the prontosan soak and the fucibet but now applying foam pads to the non healed areas. vaseline is protecting the good skin and jelonet is keeping it from drying up. then the tubinet and double tubigrip...
